Having a child with a rare diagnosis is some what isolating.
After Emily was diagnosed with Cri du Chat Syndrome in Oct 1999, nobody else in our world had Cri du Chat Syndrome, nobody had even heard of it.
Seriously, even our doctors didn’t know anything about it!
Facebook helped us connect with other families and when I started to blog, I decided to introduce you to some of our extended family!
Here are my interviews so far!
If you would like to be added to the list, please send me a note or reach out in the comments below!
NEW!!! We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.
You can also find me on Twitter at @plebrass
I am on Pinterest too: Lessons from my Daughter
I just discovered StumbleUpon but I have no clue what to do there: I believe you can find me under plebrass but I need to spend quality time there.
Find more about about Cri du Chat syndrome at 5p- Society
Emily has a her own page in the family stories , you can find it here: Emily