Having a child with a rare diagnosis is some what isolating.
After Emily was diagnosed with Cri du Chat Syndrome in Oct 1999, nobody else in our world had Cri du Chat Syndrome, nobody had even heard of it.
Seriously, even our doctors didn’t know anything about it!
Facebook helped us connect with other families and when I started to blog, I decided to introduce you to some of our extended family!
Here are my interviews so far!
If you would like to be added to the list, please send me a note or reach out in the comments below!
NEW!!! We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.
You can also find me on Twitter at @plebrass
I am on Pinterest too: Lessons from my Daughter
I just discovered StumbleUpon but I have no clue what to do there: I believe you can find me under plebrass but I need to spend quality time there.
Find more about about Cri du Chat syndrome at 5p- Society
Emily has a her own page in the family stories , you can find it here: Emily
Reblogged this on Lessons from my daughter and commented:
I know, I haven’t blogged lately… We finally took our vacations. 2 weeks of traveling from Edmonton, Alberta to Victoria, British Columbia. We flew to Edmonton and drove over 2,000 km through the Rockies. From living on the East coast to discovering the West coast, it was an adventure! I will tell you all about it once I settle back into a routine!
Meanwhile, please, go read some of my interviews with other families, who like us, have a loved one who has Cri du chat syndrome!