Cri du Chat Awareness 2018 (Day 7)

My girl the athlete!

4 words I didn’t thing I would ever say when we started on this journey!

So today, I’m not speaking of limitations, today, I am showing possibilities!

Fishing

Swimming

Playing baseball

Horseback riding

Walking on the beach!

Playing on outdoor exercise equipmentMeeting an Olympian

Completing a 5km walk

Playing a game I can’t remember the name of…Playing mini golfMeeting a Dolphin Stretching

Still fishing! She’s her father’s daughter! SailingCheerleading

Emily knows no limitations!

Her activities are adapted to her which means the possibilities are endless!

Emily’s syndrome doesn’t define her!

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page on Facebook.

You can also find me on Twitter at @plebrass

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Cri du Chat awareness week 2018 (Day 3)

Cri du Chat Syndrome can’t be cured but with love, therapies and family support, our kids have a chance to reach their full potential!

From the 5p- Society website

Treatments

Occupational therapy

Occupational therapy benefits our kiddos by providing fine motor, visual perceptual, self-care and sensory integration intervention to assist the child/young adult to maximize their skills, develop new skills and be able to relate more effectively to the environment around them.  Occupational therapists who work with children have education and training in child development, neurology, medical conditions, psychosocial development, and therapeutic techniques.

Physical Therapy

Children with Cri du Chat syndrome may experience physical difficulties during their growth and development. Physical therapy can help your child’s physical development in the following ways: helping them to sit, stand, improve fine motor skills, etc. The goal of physical therapy for children is not to speed up the rate of their development, but to facilitate the development of optimal physical movement.

Speech Therapy

Speech therapists work with children from an early age to aid in swallowing by providing advice on what best methods exist for feeding. As children with Cri du Chat syndrome grow older, they may experience problems with their speech. Speech therapists provide guidance on assisting children with communication issues by utilizing and teaching different methods of communication such as: sign language, picture exchange system, technology assisted communication, etc.

Alternative Therapies

Many families have found the use of alternative therapies as a way to complement Occupational, Physical and Speech therapy.  Here is a list of therapies that other children and/or adults with the syndrome have benefited from:

▪ ABA Therapy (Applied Behavior Analysis)

▪ Adaptive Physical Education

▪ Aromatherapy

▪ Aquatic Therapy

▪ Behavior Therapy

▪ Cranial Sacral Therapy

▪ Dolphin Therapy

▪ Hippo-therapy (also known as Horse Therapy)

▪ Music Therapy

▪ Play Therapy

▪ Pragmatic Group Therapy

▪ Sensory Learning Therapy

We have tried many therapies and activities over the years.

One of Emily’s favorite is Hippotherapy although I am fairly certain that if Dolphin Therapy was available around here, she would make us buy her a membership for life 

We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass