Today I was inspired.
It happens regularly that Emily inspires me but today it was a whole community.
A mom to a new 10 weeks old beautiful child with cri du chat syndrome asked our Facebook support group if her baby would ever smile.
What was a really raw question generated the most amazing answer. Her post filled quickly with pictures of smiling kids of all ages.
We are a really special support group, we are a family and I would love to introduce you to our extended family.
I’ve reached out and it looks like many families are ready to tackle this journey with me.
My first interview will be with Emily.
Q: Hi Emily! Can you tell me a little bit about yourself?
A: Well… I have no idea. I play a lot of baseball. I have two dogs. I do some painting and that’s it. I am 16.
Q: Can you tell me about your syndrome?
A: My syndrome (giggle). I have cry like a cat syndrome. It effect my #2s. (Laughing out loud now). It effect my voice, my eyes and of course it effects… Yeah.
Q: Do you see yourself as different?
Q: Do people see you as different?
Q: Do you have hobbies?
A: Painting, puzzles, horseback riding, bowling and baseball.
Q: What do you like best about school?
Q: What would you like to do when you grow-up?
A: That’s a really trick (tricky) question. I have no idea.
Thank you baby girl. You are awesome.
Going forward, I will have 5 standard questions for families and some for the person with cri du chat syndrome.
I can’t wait for all of you to meet our extended family.