I know, I haven’t blogged lately… We finally took our vacations. 2 weeks of traveling from Edmonton, Alberta to Victoria, British Columbia. We flew to Edmonton and drove over 2,000 km through the Rockies. From living on the East coast to discovering the West coast, it was an adventure! I will tell you all about it once I settle back into a routine!
Meanwhile, please, go read some of my interviews with other families, who like us, have a loved one who has Cri du chat syndrome!
Having a child with a rare diagnosis is some what isolating.
After Emily was diagnosed with Cri du Chat Syndrome in Oct 1999, nobody else in our world had Cri du Chat Syndrome, nobody had even heard of it.
Seriously, even our doctors didn’t know anything about it!
Facebook helped us connect with other families and when I started to blog, I decided to introduce you to some of our extended family!
Here are my interviews so far!
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