Cri du Chat Awareness 2018 (Day 7)

My girl the athlete!

4 words I didn’t thing I would ever say when we started on this journey!

So today, I’m not speaking of limitations, today, I am showing possibilities!

Fishing

Swimming

Playing baseball

Horseback riding

Walking on the beach!

Playing on outdoor exercise equipmentMeeting an Olympian

Completing a 5km walk

Playing a game I can’t remember the name of…Playing mini golfMeeting a Dolphin Stretching

Still fishing! She’s her father’s daughter! SailingCheerleading

Emily knows no limitations!

Her activities are adapted to her which means the possibilities are endless!

Emily’s syndrome doesn’t define her!

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page on Facebook.

You can also find me on Twitter at @plebrass

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Look who’s sitting in her car again!

Me!

This time, I’m in front of one of the local Boys and Girls club, it’s after dinner time, it’s cold and I didn’t bring my book.

Emily is in there with the lady from Community Living and her intern.

If it goes well tonight, this could be another recurring volunteer gig for my girl so I’m sitting here for what could be 3 hours…

Here’s to hoping she can have support worker hours approved to help with this as I can’t imagine I would enjoy volunteering here to help her.

How I wish I could be a fly on the wall to see how the kids are reacting to her, if they are nice to her, if she fits in.

I hate not being with her and provide her a buffer just in case but I know I have to give her room to learn and grow…

This is a crazy roller coaster ride my friends and here I thought it would get easier once she would be an adult.