14th Anniversary

As relevant on her 18th diagnosis anniversary as it was on her 14th!

Lessons from my daughter

Yesterday was our 15th Wedding anniversary!

Today is the 14th anniversary of Emily’s diagnosis.

Even if I wanted to forget today’s date I can’t!

14 years ago, when we celebrated our first wedding anniversary, we were still waiting for Emily’s blood work. We had received all the other test results.

We knew something was not quite right with the white matter in her brain. We needed a MRI to confirm exactly what was going on.

As per Wikipedia,

White matteris one of the two components of thecentral nervous systemand consists mostly ofglialcells andmyelinatedaxonsthat transmit signals from one region of thecerebrumto another and between the cerebrum and lower brain centers.

White matter, long thought to be passive tissue, actively affects how the brain learns and functions. Whilst grey matter is primarily associated with processing and cognition, white matter modulates the distribution…

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Happy 19th Birthday Emily

I can’t believe Emily is 19 already!

Where we live, being 19 means that now my baby can legally purchase and consume alcohol. 

So this morning, we had brunch!  Including mimosas!



Emily really enjoyed her mimosa than suggested that it would probably be better with watermelon juice instead of orange juice!

My girl!  Future bartender!

Now, we are relaxing before going to the casino later tonight!

Yes, being 19 also means Emily can legally go to the casino and gamble. 

And tonight we are going to the Casino!

Happy Birthday Emily!