The things I know!

I am aware of so many things… 

I can tell you what time it is without having to look at a clock. 

I know how long it takes for Emily to….


Use the bathroom

Brush her teeth

Have breakfast with or without the tv on

I know her school schedule, her tutoring schedule, when she cheers, plays baseball, sails, rides (horses) or have appointments

Yes, I write it all on the calendar on the wall,  in a paper agenda and in a shared electronic calendar but I still know before any of those tell me

I am aware of ….

How much soap she uses in the shower or if she needs help rinsing her hair

I know how long it will take her to get dress after a shower as opposed to getting dress on a morning without a shower

I am aware of the food we have in the pantry and in the fridge so I know that we are ok to have breakfast and make lunches for school

I am aware of which pieces of clothing are clean and which are in the laundry basket. I always know if what she wants to wear is clean 

I am aware of how long it takes Emily to pick an outfit

I know when I need to pick her outfit and I know how to lay her clothes on her bed for her to get ready faster

I get a little nagging feeling when she needs help.  By the time she says “mom!?!?!” I’m already on my way 

It’s not even 8am and all of this has happened already


While I make sure Emily stays on task, I am also getting ready for my day.

I know how she is feeling.  I know when she’s healthy or sick and I know when she’s trying to fake being sick. I know which part of her body hurts even when she can’t tell me

I am aware of the help she might need to clean-up and do her hair and make-up

I know to ask her if she wants to put on jewelry

I am aware of the weather

I know how to help Emily pick her shoes, jacket and scarf for the day

I know the music she wants to listen to on the way to school

I am aware when she wants to talk and when she wants to sing

I know some of her dreams and hopes

This week, she started grade 12!

I know everything she eats

I know the shows and movies she likes

I thought I knew all of her struggles but missed a big one recently, it nearly broke my heart to learn about it

I see every changes on the floor, ground, sidewalk, hallway, stairs. I know Emily might not see them or might think their is a step when there is none. So I am aware of our surroundings.  All the time!

I know her medical history

I am her biggest fan and strongest advocate

I am her mom and the day she was born I never dreamed that my life would be like this but today, I wouldn’t change anything!

I’m exhausted but I adore Emily, she is an amazing young lady


I know I need to find her that special person to teach her more about painting so she can improve her art

I know I need to help her make connections in the community

I know I need to focus on learning about adult programs, support workers and how Emily will continue to learn and grow after high school is over
I know I need to treat her like a young adult and teach her life skills

I know she needs to learn to be more independent 

I know this is where we are at but in my heart, she will always be my baby

If you haven’t had a chance, please go check Emily’s business page on Facebook:  Emily’s Hopes and Dreams

High School Senior

Emily’s first 15 months went by so slowly.

Everything was unknown and answers were not available.

Than we had a diagnosis and time kept moving really slowly. With appointments and therapies, it felt like we were stopped somewhere instead of being on a journey to somewhere else. 

We worked so hard to help her learn and grow. 

She worked so hard at everything!

And this week, Emily started her Senior year in High School!

I am so proud of her!