Don’t judge what you don’t know!

IMG_7140If you have been following Lessons from my Daughter for awhile, you know about the famous elbow to the head.

It happened on October 2nd 2013 and I wrote about here: It’s not nice to hit

Come on, go back and click the link, it will help you follow where I am going.

I rarely write about the downside of having a child who doesn’t quite control her movements.

That hit on October 2nd 2013 did something to me.

To start, it gave me a concussion.  I tried to ignore it for a week before the headaches and discomfort made me consult.

It took me 2 weeks before I woke-up without a headache.

By Halloween (29 days later) I was still not well so I treated you to pictures of Emily dressing up.  The art of dressing up! Not just for halloween…!

A couple of days later I went back to work but I was careful not to over do it.

Over the following 2 years, I have had what I call concussion headaches, hopping on a plane now means serious headaches on arrival.  I asked the dentist if my teeth were turning bad as they were hurting so much but the dentist said they were fine.  I consulted various specialists and therapists about my headaches, my concussion, my ears, my teeth and my jaw

I thought I was losing my mind.

September 2015, I was enlighten From concussion to TMJ  and embarked on a new recovery path.

My dentist changed my little metal bar behind my teeth to a retainer around that same time.

Within days it was obvious that I clench and lock my jaw overnight which contributes to my headaches and jaw pain.

As of yesterday 29.5 months later, I now have a bite plate to wear at night to help reduce the stress on my jaw and eventually, hopefully reduce the headaches…

I haven’t been on a plane since May, we will see in June if this is still an issue.

I can’t imagine ever riding a roller coaster again as the movements are too much for my brain.

This is my reality.

The reality of many parents out there.

Our kids are not trying to hurt us, Emily never meant to hit me exactly where it would trigger all of this.  None of this is her fault but this is my reality.

I rarely write about the downside of having a child who doesn’t quite control her movements because I don’t want to dwell on it.

I try not to think too much about how over the years, I had my hair and nail pulled, I got slapped, pushed, bitten, kicked or hit.  How much sleep I didn’t get, how much vomit I cleaned or how many vacation days I spent in hospital or in therapies.  I don’t want to know how much money and time we spent on tutoring, sign language classes, PECS system and other therapy equipment.

I don’t want to associate my back pain, my headaches and TMJ with my child so I don’t.

This is my reality and the reality of many other parents of exceptional children!

Recently, I have witnessed parents of children with special needs being verbally attack for taking care of themselves, for mani-pedi, for going to the gym or tanning salon.

To those parents, good for you, take care of yourself, we all need to take care and spoil ourselves for our own sanity and to continue fighting and advocating for our kid.

 To those commenting, pointing fingers and verbally attacking these parents please know that when you do that, you attack all of us.

All Of Us!

We are a big family who can be kicked and pushed around but we won’t stop moving forward, we will not stop defending our kids, we will not stop advocating for them and we will not apologize for finding tiny pockets of time to take care of ourselves.

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NEW!!!  We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

I just discovered StumbleUpon and added a StumbleMe button in my sharing options.  I have no clue what to do there but I believe you can find me under plebrass.

Find me and other mommy and daddy bloggers on Top Mommy Blog

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

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Our extended family

Having a child with a rare diagnosis is some what isolating.

After Emily was diagnosed with Cri du Chat Syndrome in Oct 1999, nobody else in our world had Cri du Chat Syndrome, nobody had even heard of it.

Seriously, even our doctors didn’t know anything about it!

Facebook helped us connect with other families and when I started to blog, I decided to introduce you to some of our extended family!

Here are my interviews so far!

21. Let’s meet Arizona

20. Let’s meet N.

19. Let’s meet Jie Jie

18. Let’s meet Turner

17. Let’s meet Kali and Kera

16. Let’s meet Natalie

15. Let’s meet Wade

14. Let’s meet Nellie

13. Let’s meet Dustine Aaron

12. Let’s meet John

11. Let’s meet Olivia

10. Let’s meet Alexia

9. Let’s meet Allan

8. Interview with Rachel

7. Let’s meet Maxwell

6. Let’s meet Katie

5. Let’s meet Kelli

4. Let’s meet Rachel

3. Let’s meet Elijah

2, Let’s meet Allie

1. Interview with Emily

If you would like to be added to the list, please send me a note or reach out in the comments below!

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NEW!!!  We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

I just discovered StumbleUpon but I have no clue what to do there: I believe you can find me under plebrass but I need to spend quality time there.

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily