Our extended family

Having a child with a rare diagnosis is some what isolating.

After Emily was diagnosed with Cri du Chat Syndrome in Oct 1999, nobody else in our world had Cri du Chat Syndrome, nobody had even heard of it.

Seriously, even our doctors didn’t know anything about it!

Facebook helped us connect with other families and when I started to blog, I decided to introduce you to some of our extended family!

Here are my interviews so far!

21. Let’s meet Arizona

20. Let’s meet N.

19. Let’s meet Jie Jie

18. Let’s meet Turner

17. Let’s meet Kali and Kera

16. Let’s meet Natalie

15. Let’s meet Wade

14. Let’s meet Nellie

13. Let’s meet Dustine Aaron

12. Let’s meet John

11. Let’s meet Olivia

10. Let’s meet Alexia

9. Let’s meet Allan

8. Interview with Rachel

7. Let’s meet Maxwell

6. Let’s meet Katie

5. Let’s meet Kelli

4. Let’s meet Rachel

3. Let’s meet Elijah

2, Let’s meet Allie

1. Interview with Emily

If you would like to be added to the list, please send me a note or reach out in the comments below!

💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜

NEW!!!  We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

I just discovered StumbleUpon but I have no clue what to do there: I believe you can find me under plebrass but I need to spend quality time there.

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

 

 

Coffee date 

Picture this!

You and I are enjoying a coffee on a terasse in the city of your choosing.

I ordered a café latté in a bowl.

Where are we?

What are you drinking?

….

We talk about things that are important in our life and we noticed rather quickly that I have told you so much about Jon, Emily and I over the last 2 years but I know really little about you…

Please take a minute to tell me a little bit more about you in the comments below.

And just in case you are shy… Let me start the conversation.

1. My hero is Emily. She’s gone through so much and is still smiling.

2. My strength comes from my mother.  She’s an amazing role model and raised me right 🙂

3. The next thing I want to learn is photography.

4. The one thing I can’t quite figure out?  Pinterest!!!

Your turn!

Please, please, please…. Chat along!!!

Tell me a a little about you

I’m sitting here with my bowl of café latté and can’t wait to get to know you better!IMG_6949

💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜

NEW!!!  We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

I just discovered StumbleUpon but I have no clue what to do there: I believe you can find me under plebrass but I need to spend quality time there.

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily