interview | Lessons from my daughter

It’s been awhile the last time I published an interview but this is something I love to do and once in awhile, I reach out to our Cri du Chat family on facebook and ask for volunteers!

Today, I have the pleasure to introduce you to ChristyAnn and Lexie!

💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜

Hello ChristyAnn and thank you for taking the time to chat with me.

Q: Can you tell me about your family?

A: Lexie is one of 6 kids. She is number 5 in birth order. She will be two at the end of this month.

Q: Tell me more about Leixe who like Emily has cri du chat syndrome.

A: Lexie has good receptive language, you can tell she understands, but her expressive language is delayed. She is learning sign language . She crawls, sits up, pulls self to stand, tries to climb, but won’t walk yet. She loves to tease people. She’s a little jokester. Always laughing, always happy.

Q: Tell me about doctors, therapies or school?

A: Our days consist of Lexie and her little sister. We have physical therapy once a week. Speech therapy with vstim once a week. Occupational therapy 4times a month. And numerous doctor and specialist appointments in between. Her most important doctors have been her pulmonologist and GI doctor.

Q: Tell me a success story?

A: We have faith that every milestone has been because of God. I take her regularly to receive anointing of the sick at our church. And milestones seem to come after these blessings.

She used to have a hard time holding her head up because of low tone. So her head would always rest towards her right shoulder. A few days after her first anointing, her kink in her head was gone. grin emoticon I truly believe that prayer, faith, and hard work keeps her achieving milestones.

This was her as a baby. You can see her turning her head to her favorite shoulder. Therapies involved helping her stretch, and massaging her neck gently.

Q: Anything else you would like the world to know?

A: She also loves cats and dogs.

Lexie has her own facebook page if you would like to follow her progress.

💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜

NEW!!! We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

I just discovered StumbleUpon and added a StumbleMe button in my sharing options. I have no clue what to do there but I believe you can find me under plebrass.

Find me and other mommy and daddy bloggers on Top Mommy Blog

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

Having a child with a rare diagnosis is some what isolating.

After Emily was diagnosed with Cri du Chat Syndrome in Oct 1999, nobody else in our world had Cri du Chat Syndrome, nobody had even heard of it.

Seriously, even our doctors didn’t know anything about it!

Facebook helped us connect with other families and when I started to blog, I decided to introduce you to some of our extended family!

Here are my interviews so far!

21. Let’s meet Arizona

20. Let’s meet N.

19. Let’s meet Jie Jie

18. Let’s meet Turner

17. Let’s meet Kali and Kera

16. Let’s meet Natalie

15. Let’s meet Wade

14. Let’s meet Nellie

13. Let’s meet Dustine Aaron

12. Let’s meet John

11. Let’s meet Olivia

10. Let’s meet Alexia

9. Let’s meet Allan

8. Interview with Rachel

7. Let’s meet Maxwell

1. Interview with Emily

If you would like to be added to the list, please send me a note or reach out in the comments below!

💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜

NEW!!! We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

I just discovered StumbleUpon but I have no clue what to do there: I believe you can find me under plebrass but I need to spend quality time there.

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily