Cri du Chat Awareness 2018 (Day 7)

My girl the athlete!

4 words I didn’t thing I would ever say when we started on this journey!

So today, I’m not speaking of limitations, today, I am showing possibilities!

Fishing

Swimming

Playing baseball

Horseback riding

Walking on the beach!

Playing on outdoor exercise equipmentMeeting an Olympian

Completing a 5km walk

Playing a game I can’t remember the name of…Playing mini golfMeeting a Dolphin Stretching

Still fishing! She’s her father’s daughter! SailingCheerleading

Emily knows no limitations!

Her activities are adapted to her which means the possibilities are endless!

Emily’s syndrome doesn’t define her!

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page on Facebook.

You can also find me on Twitter at @plebrass

Advertisements

Busy weekend

When Emily was little I worried about her future.

Emily15mo

To put this in context, you need to remember that in October 1999…

Just days after the picture above was taken…  Genetic counselors a at the Montreal Children Hospital told us that due to Emily having Cri Du Chat syndrome, her future meant…

No walking!

No talking!

No understanding us!

No showing emotions!

No eating solid food!

At no point did they say this was a worst case scenario.

There was no doubt in their mind that this was going to be Emily’s life and we could see them feeling sorry for us.

We decided to give Emily the best life possible and that we would adjust to her needs and limitations.

This past weekend, was busy…

We had a roofing company over, putting a new roof on our house…

Meanwhile, Emily was starting her Cheer fall sessions.  It was time to talk goals and prepare a lesson plan She loved cheer this past summer so she’s ready for more.  Remember this picture?IMG_2820

An hour after cheer was done, Emily was at her baseball’s team end of summer game and party.  

  Emily and all her team mates got team jackets!  How cool is that?

  We had 39 players this year, divided into 2 groups.
We concluded Saturday with attending a hockey game.

Sunday morning, Emily was volunteering at her riding club. When coaches are tested to move up in their certifications, they need riders and Emily wants to help.

  

Emily helped coaches from other clubs on Sunday and they loved her 🙂

We had a busy weekend!

None of these would be possible if it wasn’t for amazing people getting together and wanting to provide opportunities for kids with special needs.

Thank you Cheer Olympia

http://www.olympiacheerleading.com/mobile/en/

Thank you Field of Dreams

http://monctonfishercats.com/fishercats2015/index.php/field-of-dreams

And thank you Cavalier riding club

http://cavalierridingclub.weebly.com

You are amazing and although I was grateful for this busy weekend to be over, I am even more grateful for the opportunities you are giving Emily and many others.

Thank you to your board of directors or owners and thank you to the volunteers who give their time, energy and positivity.

All of you, are part of our family now!

In the coming weeks, I will share more about Emily’s riding club as she starts her fall session this week and I will let you know more about Emily’s baseball team and our fully accessible baseball field project…