Cooking | Lessons from my daughter

February 29th is Rare Disease Day

In my own way, through writing about our experiences raising Emily, I continue to spread the word about Cri du Chat Syndrome (CdCs)

I do my best to share experiences that are positive, fun and inspiring. I don’t shy away from writing about struggles but I will always respect Emily’s need for privacy on some more personal topics.

Did you know…

Only 1 in approximately 50,000 born will miss that tiny part of their 5th chromosome…. chances of knowing or meeting another child with CdCs are really small.

Emily was diagnosed before facebook, the information available was outdated and scary. It took us 15 years before we met others with Cri du Chat Syndrome.

Now with facebook, association and blogs, our reach is far greater and parents find up-to-date information much faster.

That being said, it is essential to increase awareness to promote acceptance for any child with special needs.

I would love for Emily’s blog “Lessons from my Daughter” to reach as many people as possible…

Would you help me by sharing this post? Please help Emily and I raise awereness for Cri du Chat Syndrome!

Thank you for being part of our journey!

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page on Facebook.

You can also find me on Twitter at @plebrass

I am on Pinterest too… one day I will figure out what to do there other than finding cool recipes but meanwhile, you can find me here: Lessons from my Daughter

Back in September, I sat down and wrote my first ever bucket list.
You can find my original post here: Autumn Bucket List

The last 2 items on my list are:

39. Document my bucket list with pictures

40. Blog about my progress weekly ….😞 I didn’t do this weekly but here I am with my 6th and final update.

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This is my last update… what did I do and what did I “not do”!

#3 – Spend an afternoon painting pumpkin.

We waited so long that we ended-up making winter pumpkins… at least it started that way….

But ended this way… 🙂

#14 – Make cookies with Em and let her eat as many as she wants.

We do that regularly but didn’t take any pictures. We made chocolate chip cookies, sugar cookies and gingerbread cookies.

#16 – Trim our Christmas tree

Did you notice the cute ballerina on the wall? That’s me, many years ago!

#25 – Donate a turkey to the turkey drive.

Emily and I donated a turkey to her school to help them in their food drive. I am really happy to say that her high school was once again the top high school in collecting food for our region! I am so proud of those kids and families for all they do for our community.

And now, here is what I didn’t do!

#11 – Jump in puddles with Em – She always walks through puddles 🙂 and I walk around them. I haven’t jump in a puddle with her! Maybe that should be a summer item!

#24 – Take Jake and Maple to the groomer… We should really do this. I am going to move this to my to-do list.

#26 – Help deliver Christmas food box with my team. I am slightly ashamed to say that I didn’t do it this year. My schedule was so full, I couldn’t figure out how to rearrange my schedule… 😦

#29 – Bring goodies for the next bake sale at work – I was off the day of the bake sale and didn’t bring anything. I will bring some for the next bake sale.

#30 and #33 – Write and mail Christmas cards – I suck at this, I know it means the world to many to receive hand-written Christmas cards but I like human contact. I like to visit when I can and I like to buy gifts when I see my nephews. I don’t mail gifts…

Here you have it! My final update.

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