photography | Lessons from my daughter

Whenever I have a chance to let the world know about my girl, I seize it.

I wish more opportunities would present themselves but for now, I will embrace what is there as I truly don’t have the time to go out and create opportunities.

Earlier this year or late last year, Emily was asked to be part of a calendar, to raise awareness for Cri du Chat syndrome

You can find Faces of Grace Organization on Facebook

For the month of January, you get some facts on Cri du Chat Syndrome

Cri du Chat (Cat’s cry) syndrome, also known as 5p- (5p minus) syndrome, is a chromosomal condition that results when a piece of chromosome 5 is missing. Infants with this condition often have a high-pitched cry that sounds like that of a cat. The disorder is characterized by intellectual disability and delayed development, small head size (microcephaly), low birth weight, and weak muscle tone (hypotonia) in infancy. Affected individuals also have distinctive facial features, including widely set eyes (hypertelorism), low-set ears, a small jaw, and a rounded face. Some children with cri du chat syndrome are born with a heart defect.

And the model for the month of October is non other than Emily!
I bought many calendars and shipped them to friends and family!

If you are in the US and would like a calendar, I beieve there are still some available for purchase : Here

If you are not from the US (like me) you might need to arrange with the person on the facebook page to get a calendar. 100% of the proceeds go to the 5p-society.

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NEW!!! We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

I just discovered StumbleUpon but I have no clue what to do there: I believe you can find me under plebrass but I need to spend quality time there.

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

February 29th is Rare Disease Day

In my own way, through writing about our experiences raising Emily, I continue to spread the word about Cri du Chat Syndrome (CdCs)

I do my best to share experiences that are positive, fun and inspiring. I don’t shy away from writing about struggles but I will always respect Emily’s need for privacy on some more personal topics.

Did you know…

Only 1 in approximately 50,000 born will miss that tiny part of their 5th chromosome…. chances of knowing or meeting another child with CdCs are really small.

Emily was diagnosed before facebook, the information available was outdated and scary. It took us 15 years before we met others with Cri du Chat Syndrome.

Now with facebook, association and blogs, our reach is far greater and parents find up-to-date information much faster.

That being said, it is essential to increase awareness to promote acceptance for any child with special needs.

I would love for Emily’s blog “Lessons from my Daughter” to reach as many people as possible…

Would you help me by sharing this post? Please help Emily and I raise awereness for Cri du Chat Syndrome!

Thank you for being part of our journey!

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page on Facebook.

You can also find me on Twitter at @plebrass

I am on Pinterest too… one day I will figure out what to do there other than finding cool recipes but meanwhile, you can find me here: Lessons from my Daughter