Faces of Grace

Whenever I have a chance to let the world know about my girl, I seize it.

I wish more opportunities would present themselves but for now, I will embrace what is there as I truly don’t have the time to go out and create opportunities.

Earlier this year or late last year, Emily was asked to be part of a calendar, to raise awareness for Cri du Chat syndrome

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You can find Faces of Grace Organization on Facebook

For the month of January, you get some facts on Cri du Chat Syndrome

Cri du Chat (Cat’s cry) syndrome, also known as 5p- (5p minus) syndrome, is a chromosomal condition that results when a piece of chromosome 5 is missing.  Infants with this condition often have a high-pitched cry that sounds like that of a cat.  The disorder is characterized by intellectual disability and delayed development, small head size (microcephaly), low birth weight, and weak muscle tone (hypotonia) in infancy.  Affected individuals also have distinctive facial features, including widely set eyes (hypertelorism), low-set ears, a small jaw, and a rounded face.  Some children with cri du chat syndrome are born with a heart defect.

And the model for the month of October is non other than Emily!
I bought many  calendars and shipped them to friends and family!

If you are in the US and would like a calendar, I beieve there are still some available for purchase : Here

If you are not from the US (like me) you might need to arrange with the person on the facebook page to get a calendar.  100% of the proceeds go to the 5p-society.

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NEW!!!  We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

I just discovered StumbleUpon but I have no clue what to do there: I believe you can find me under plebrass but I need to spend quality time there.

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

Counting sleeps

On Saturday, we finally told Emily she was getting her dream to go to Florida to see (and meet) Winter and Hope

On Sunday morning, I took our calendar down to count sleeps with Emily and found that April 1st to 12th were circled.

I asked Em what that was about and she said she counted days…

When looking down, next to March 30th it said 18 days…

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I’ve always believed in Emily’s abilities and this is so cool!!!

We told her the trip was scheduled in May so she counted days till May!

Seriously, how awesome was that?!?!

I’m giving her 10/10 for that.

Next, I showed her how to count sleeps until our flight…

Every morning, I ask Emily how many sleeps left and she answers me before looking at the calendar.

Think about this one for a minute…

She is counting backward!!!!

Yeah bébé!!!  My girl is rocking this counting backward thing!!!

She’s awesome!!!

So now, after she’s done with school at 3:15pm, I text her a picture.

They are official Clearwater Marine Aquarium pictures and they make my girl so happy!!