Whenever I have a chance to let the world know about my girl, I seize it.
I wish more opportunities would present themselves but for now, I will embrace what is there as I truly don’t have the time to go out and create opportunities.
Earlier this year or late last year, Emily was asked to be part of a calendar, to raise awareness for Cri du Chat syndrome
You can find Faces of Grace Organization on Facebook
For the month of January, you get some facts on Cri du Chat Syndrome
Cri du Chat (Cat’s cry) syndrome, also known as 5p- (5p minus) syndrome, is a chromosomal condition that results when a piece of chromosome 5 is missing. Infants with this condition often have a high-pitched cry that sounds like that of a cat. The disorder is characterized by intellectual disability and delayed development, small head size (microcephaly), low birth weight, and weak muscle tone (hypotonia) in infancy. Affected individuals also have distinctive facial features, including widely set eyes (hypertelorism), low-set ears, a small jaw, and a rounded face. Some children with cri du chat syndrome are born with a heart defect.
If you are in the US and would like a calendar, I beieve there are still some available for purchase : Here
If you are not from the US (like me) you might need to arrange with the person on the facebook page to get a calendar. 100% of the proceeds go to the 5p-society.
NEW!!! We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.
You can also find me on Twitter at @plebrass
I am on Pinterest too: Lessons from my Daughter
I just discovered StumbleUpon but I have no clue what to do there: I believe you can find me under plebrass but I need to spend quality time there.
Find more about about Cri du Chat syndrome at 5p- Society
Emily has a her own page in the family stories , you can find it here: Emily