To be a cheerleader…

I am trying to write once again! I miss it terribly but can’t force my brain to heal faster than is required.

I am also hoping to be able to do a full week of work soon, I miss being on top of my game.

I miss my healthy brain!

Enough about me!

Emily has had a desire to be a cheerleader for years. We have gym mats on the floor in her playroom.  In her world, she is a cheerleader!

She has the high school musical cheerleader outfit.  She has many pom poms.

Even her American Girl Dolls are cheerleaders.

We tried to put her in a team last summer.  They wanted to accommodate her but had no idea how to do it.  It didn’t work out.  Emily was overwhelmed and the solution proposed was to put a 14 year old 5’5″ tall with the younger kids… Like that wouldn’t make her the center of attention.

We refused that option, Emily was disappointed but got over it. We all did.

This past summer, another cheerleading club took a couple of kids with special needs and practiced the basics of cheer.  It went well!

My bestie’s daughter and Emily’s best friend was one of the coach.  I got updates here and there about how it was going.

When they decided to open it up to more kids this fall, we decided to give it a try.

Currently, there is only 3 kids registered and 4 or 5 coaches….  That’s great.  More kids would be more fun but right now, Emily is getting the attention she needs to learn basics and build self-confdence.

I have promised Emily a trip to Lululemon in Halifax if she keeps going!  I know I am bribing her but this is some serious exercise for her!  After 40 minutes, she wants to call it quit and after the hour, she is sweaty….  🙂


As Emily is struggling with some basic things like jumping while holding her arms up in the air or basic summersaults… I am thinking about adding yoga to our life…  yoga for kids, Emily and I could do it and daddy would help with Emily’s balance… slowly, it should help stretch Emily’s legs and build more balance!

If you can suggest any program, please let me know.  Wii or Kinect games are not necessarily good because they ask the person playing to perform up to a certain standard otherwise you are “not good enough” which is really upsetting for Emily.  Programs on DVD would be better!

More to come on this project and how Emily is doing!

But before I go, please enjoy this 5 seconds accomplishment from my amazing daughter!

Some experiences you just can’t buy!

Yesterday afternoon was magical!

It was magical for Emily, for her team mates from the Field of Dreams, for all the parents standing there and taking pictures and making videos, for the volunteers, for the Hub City Brewers and for the Blue Jays organization and former players!

Yesterday was something money can’t buy for our kids with various ability levels.

Look at this video of Emily!

If you are new to my blog, you are probably thinking that Emily is a pretty poor baseball player.


That’s ok! I get it….

The guy pitching was close to her, he pretty much gave her the ball before she kinda ran to first base…

Allow me to help you see the magic in that short video.

Emily was diagnosed with Cri du chat syndrome in October 1999 when she was 15 months old.

At the time, we were told (amongst other things) that she would never walk, understand us, recognize us, communicate with us, her brain & body would never function properly.

Now… remember that video!

She is exactly where she needs to be, standing on her own, swinging that bat around to warm-up, keeping her eyes on the pitcher and on the ball. Her eyes are telling her brain that the ball is coming and her brain is telling her arms and hands to move at the exact time required to hit that ball. Once she’s made contact with the ball, she puts the bat down and runs to first base. At first base, she high fives…. Roberto Alomar!

Who’s Roberto Alomar? Come on… really? You don’t know???

Here’s his Wikipedia page:

So… now that you know all the things Emily would never do and that not only she’s awesome on that video, she’s also playing baseball with former Blue Jays player and Hall of Famer Robbie Alomar….

Let me ask you again, how is that video?

I admit that my voice is annoying but overall that video is amazing!!!

The afternoon was beyond anything I could have imagined.

Look at Emily’s team!


Look at those smiles!

We made first page of the local newspaper


I wished the newspaper would still let you read it on-line for free, I would have love to give you the link to the article because it’s great. They talk about the Blue Jays players but they mostly talk about our players.

See these guys with Emily?


She was chatting with them while the “Blue” were at the bat!

The guy on the left is Sandy Alomar Sr.,_Sr.

Later on when he was signing Emily’s new Blue Jays t-shirt, I asked him what they were talking about earlier…


Turns out Emily was telling him about hockey and Justin Bieber….

LOL…. she talked to a former MLB player about her favorite sport to watch….. Hockey!!!

How awesome is that? Talk about full honesty, no pretenses, no BS… just 100% Emily truth.

In the newspaper article, they mentioned how one of our player asked Duane Ward if he plays Super Mario. 🙂 The guy won 2 world series but our player wanted to talk about video games … and apparently, Duane is not really good at video games.

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3 years ago, Emily lasted 15 to 20 minutes a week at baseball than wanted to go home, Now she stays for the hour and a half. She gets there, says hi to Lexie, Jacob, Pascale, Taylor and so many more… She gives Brent a hug, says hello to Pat (the field of dream pitcher) than look for Mikey. He’s number 7 for the Hub City Brewers and he is Emily’s favorite guy. Not sure why she picked him… but over the last 3 years, that guy has allowed her to talk about Justin Bieber as much as she wants. He is helping her learn to catch the ball… that’s a work in progress and he is not giving up. In previous years, when Mikey was not there, Emily used to be completely lost but now she can go see another player and manages just fine.

When people look at our kids they see their differences, they see their disabilities.

Yesterday on that baseball field, I only saw abilities…. abilities of various levels. Everybody at the same level, it’s easy when the game is just a game. Everybody went to bat and went around all the bases. Nobody counted points, not because they are all winners but because it was a game! It was fun!


Grey or Blue team didn’t matter, they all cheered for each other, they all high fived each other, they all laughed and ran and played!

Yesterday was the kind of day you can’t buy for our kids, this is the kind of day that happens only when a group of amazing people get together and believe in a common cause…


Thank you to all that made that day possible!

Yesterday, Emily’s baseball team was invited to participate in a 90 minutes baseball game with some former Blue Jays that were in town as part of Blue Jays Honda Super camp

Emily’s field of Dreams team exist because of the Hub City Brewers, their wifes and girlfriends, their friends and some other great volunteers…

Those guys, all have jobs, they train with their team, they play games from Spring to Fall and spend 1.5 hour per week with our kids, playing baseball. Making each and every single one of them feel like a pro baseball player.

The opportunity to play with the Blue Jays was made possible by an alignment of stars and the contribution of not only the Blue Jays and the Hub City Brewers but also the involvement of Baseball Canada’s challenger program.

Thank you to all of you!