Another Cheer competition!

With the start of summer season, starts anew cheer season for Emily and the Pillars! So far, it looks like we have 5 out of 5 girls returning and 2 new joining! I am so happy to see their team grow and I can’t wait to cheer for them all!

Pascale LeBrasseur's avatarLessons from my daughter

This weekend, we, once again, did something new.

Friday, I packed our suitcases and we were on the road as soon as Jon was done work.

On Saturday, Emily’s cheer team was performing at the NB Provincial cheer competition.

We drove for almost 3 hours to make it to our home away from home for the weekend.

Look at my cheerleader! She looks like a typical teenager!

Make-up time in the stands!

All dolled-up

Emily and her team did amazing.

They were the last team to go and by that time, I would say that the 800 or so cheerleaders competing plus their parents and families were back in the Civic Centre.

It was, after all, almost award time.

The place was packed and it scared me.

All day, I watched as cheerleaders and family from the gym of the competing team sat on the floor in front of the…

View original post 454 more words

Our extended family

I know, I haven’t blogged lately… We finally took our vacations. 2 weeks of traveling from Edmonton, Alberta to Victoria, British Columbia. We flew to Edmonton and drove over 2,000 km through the Rockies. From living on the East coast to discovering the West coast, it was an adventure! I will tell you all about it once I settle back into a routine!
Meanwhile, please, go read some of my interviews with other families, who like us, have a loved one who has Cri du chat syndrome!

Pascale LeBrasseur's avatarLessons from my daughter

Having a child with a rare diagnosis is some what isolating.

After Emily was diagnosed with Cri du Chat Syndrome in Oct 1999, nobody else in our world had Cri du Chat Syndrome, nobody had even heard of it.

Seriously, even our doctors didn’t know anything about it!

Facebook helped us connect with other families and when I started to blog, I decided to introduce you to some of our extended family!

Here are my interviews so far!

21. Let’s meet Arizona

20. Let’s meet N.

19. Let’s meet Jie Jie

18. Let’s meet Turner

17. Let’s meet Kali and Kera

16. Let’s meet Natalie

15. Let’s meet Wade

14. Let’s meet Nellie

13. Let’s meet Dustine Aaron

12. Let’s meet John

11. Let’s meet Olivia

10. Let’s meet Alexia

9. Let’s meet Allan

8. Interview with Rachel

7. Let’s meet Maxwell

6. Let’s meet Katie

5. Let’s meet Kelli

4…

View original post 147 more words