Inspiration | Lessons from my daughter

Lately, I have shared with you some older blog posts and some more recent success stories.

Most of the blog activities and facebook pages for kids with Cri du Chat syndrome are about the little ones. Not many are about teenagers or young adults, I am an anomaly…

This morning, we went shoes and clothes shopping and got lots of new items for Emily!

We went for a late breakfast after all the shopping!

When our plates arrived, I did what I always do. I set my plate aside and started to fix-up hers. I started by cutting all the fruits in bite-size pieces, moved the smoked salmon aside, cut her bagels in manageable pieces, added the salmon back on top, moved the red onions and capers to the side, cut the tomatoes…

My food was lukewarm by the time I was ready to eat. I’ve been eating lukewarm to cold food for 17 years now… It taste good. Actually, I can’t eat hot food or drink hot coffee anymore!

As we ate, Emily started talking about her upcoming blog and what she would like to talk about than reminded me that I promised to write about her love of the Paw Patrol tv show…

If you have little ones and still don’t know about the Paw Patrol You need to check it out as they will soon invade your house!

If you have a sense of humor, you should read this post that appeared in my facebook feed earlier this week. Click HERE!

Meanwhile, my 17 year old daughter loves those puppies and spent months asking us to go to all the stores in town to find an Everest to add to her collection.

We didn’t find Everest but eventually found this kit!

These figurines come with their pup packs and she got the silly chicken and cute cat too!

Emily was so happy to have them all now and obviously, if we were only missing Everest… you can assume that we have doubles…

Each dog has been matched with a princess, each match was made for a really specific reason.

Jon and I keep moving the princesses and dogs around just for fun. It takes Emily seconds to realize that her toys have been moved 🙂 She continues to fix them up. It’s amazing how she notices instantly when we do that.

Those figurines aren’t the only Paw Patrol puppies we have in the house.

Emily has many Webkinz so she picked 7 and named them after the Paw Patrol. Those resides on her headboard.

Emily also have the pretend Paw Patrol puppies living with us.

Emily has a big pretend world!

Our house is full of so many pretend friends!

If you like to read about Emily and would like timely updates of little and big things happening in her life, you should follow Lessons from my daughter‘s page on Facebook. This is where I post tidbits of information before I have time to write a proper blog post. Some stories might never get a full blog post! Join us there too!

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

You can also find me on Twitter at @plebrass

I am on Pinterest too… one day I will figure out what to do there other than finding cool recipes but meanwhile, you can find me here: Lessons from my Daughter

March 2012

Emily is 13 years old and performed at the school coffee house.

By performed I mean she signed-up for it, practiced with her music teacher and the night of the coffee house she stood in front of the crowd and did her thing!

I’ve been holding on to this video for 4 years.

I’m ready to show you!

But before you watch it you should know.

When Emily signed-up, I was proud of her and scared. I called her school and her music teacher said it would be fine… So I went with it.

Over the years, I’ve gone with it so many times.

Regardless of my feelings, if Emily wanted to try something, I said ok.

So there I was… sitting in a school’s gymnasium, with Jon, his mom, Barb & Greg and Lorraine & her family.

I was nervous while Emily was completely comfortable.

When her turn arrived, I started filming and asked the universe to keep an eye on my girl and make the crowd show love for Emily regardless of how it went.

In the video, you see Emily get ready and dedicate her song to her friend Chelsea and start singing. Than you see her realize she’s on stage and get the giggles 😊 once the giggles are under control, you can hear her sing better… Meanwhile, you can hear me sing 😳 as if I could help her get through it 😂 I’m also crying at the same time…

You’ll see or rather you’ll hear!

The crowd clapped and cheered for her but I was the loudest.

The other students there high fived her as she walked back to our table.

To this day, I still have people who were there talk to me about it.

Emily touched many people that night.

Okay…. enough chatting, go watch her and come back to tell me what you think.

Coffee House

Butterfly fly away by Miley Cyrus

You tuck me in,
Turn out the light
Kept me safe and sound at night
Little girls depend on things like that

Brushed my teeth and combed my hair
Had to drive me everywhere
You were always there when I looked back

You had to do it all alone
Make a living, make a home
Must have been as hard as it could be

And when I couldn’t sleep at night
Scared things wouldn’t turn out right
You would hold my hand and sing to me

Caterpillar in the tree, how you wonder who you’ll be
Can’t go far but you can always dream
Wish you may and wish you might
Don’t you worry hold on tight.
I promise you there will come a day
Butterfly Fly Away
Butterfly Fly Away (butterfly fly away

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page on Facebook.

You can also find me on Twitter at @plebrass

I am on Pinterest too… one day I will figure out what to do there other than finding cool recipes but meanwhile, you can find me here: Lessons from my Daughter