It’s not always about milestones and successes

Lately, I have shared with you some older blog posts and some more recent success stories.

Most of the blog activities and facebook pages for kids with Cri du Chat syndrome are about the little ones.Β  Not many are about teenagers or young adults, I am an anomaly…


This morning, we went shoes and clothes shopping and got lots of new items for Emily!

We went for a late breakfast after all the shopping!

When our plates arrived, I did what I always do.Β  I set my plate aside and started to fix-up hers.Β  I started by cutting all the fruits in bite-size pieces, moved the smoked salmon aside, cut her bagels in manageable pieces, added the salmon back on top, moved the red onions and capers to the side, cut the tomatoes…

My food was lukewarm by the time I was ready to eat.Β  I’ve been eating lukewarm to cold food for 17 years now… It taste good.Β  Actually, I can’t eat hot food or drink hot coffee anymore!

As we ate, Emily started talking about her upcoming blog and what she would like to talk about than reminded me that I promised to write about her love of the Paw Patrol tv show…

If you have little ones and still don’t know about the Paw PatrolΒ  You need to check it out as theyΒ  will soon invade your house!

If you have a sense of humor, you should read this post that appeared in my facebook feed earlier this week.Β  Click HERE!

Meanwhile, my 17 year old daughter loves those puppies and spent months asking us to go to all the stores in town to find an Everest to add to her collection.

We didn’t find Everest but eventually found this kit!

These figurines come with their pup packs and she got the silly chicken and cute cat too!

Emily was so happy to have them all now and obviously, if we were only missing Everest… you can assume that we have doubles…

Each dog has been matched with a princess, each match was made for a really specific reason.

Jon and I keep moving the princesses and dogs around just for fun.Β  It takes Emily seconds to realize that her toys have been moved πŸ™‚Β  She continues to fix them up.Β  It’s amazing how she notices instantly when we do that.

Those figurines aren’t the only Paw Patrol puppies we have in the house.

Emily has manyΒ Webkinz so she picked 7 and named them after the Paw Patrol.Β  Those resides on her headboard.

Emily also have the pretend Paw Patrol puppies living with us.

Emily has a big pretend world!

Our house is full of so many pretend friends!


If you like to read about Emily and would like timely updates of little and big things happening in her life, you should follow Lessons from my daughter‘s page on Facebook.Β  This is where I post tidbits of information before I have time to write a proper blog post.Β  Some stories might never get a full blog post!Β  Join us there too!

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

You can also find me on Twitter at @plebrass

I am on Pinterest too… one day I will figure out what to do there other than finding cool recipes but meanwhile, you can find me here: Lessons from my Daughter


I know she’s getting older but…..

Emily is as tall as me and looks stunning!

She’s a young lady… but to me, she will always be my baby!

I know, she’s 15! I know she’s not a baby but as I explained to her before, she’s “my” baby. My one and only.

Lately, when we eat out, something new is happening…

Although I am still helping Emily order, I let her give her order to the server.

Although I am still taking her plate first when supplemental prep work is required before she can eat, she does a good job at eating on her own.

Although occasionally, I still have to help her wipe her mouth or fingers after a meal…

When its time to bring our bill, the servers are now asking if its 1 bill or if we are paying separately…!


I never saw this coming but in the last couple of weeks it happened 3 or 4 times.

Yes, we eat out too much but that’s not the point… The point is that our servers thought Emily and I might have been friends or colleagues eating out and that we need to separate our bill.


I’ve try to have Emily pay for both of us but so far its not working.

When did you notice strangers looking at your kids as their own person instead of looking at them as your kids?

How did it feel?

Take it from someone who never dreamed this would happen… It’s awesome and yes, even if it means I’m getting older!