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It’s not always about milestones and successes

Lately, I have shared with you some older blog posts and some more recent success stories.

Most of the blog activities and facebook pages for kids with Cri du Chat syndrome are about the little ones.  Not many are about teenagers or young adults, I am an anomaly…

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This morning, we went shoes and clothes shopping and got lots of new items for Emily!

We went for a late breakfast after all the shopping!

When our plates arrived, I did what I always do.  I set my plate aside and started to fix-up hers.  I started by cutting all the fruits in bite-size pieces, moved the smoked salmon aside, cut her bagels in manageable pieces, added the salmon back on top, moved the red onions and capers to the side, cut the tomatoes…

My food was lukewarm by the time I was ready to eat.  I’ve been eating lukewarm to cold food for 17 years now… It taste good.  Actually, I can’t eat hot food or drink hot coffee anymore!

As we ate, Emily started talking about her upcoming blog and what she would like to talk about than reminded me that I promised to write about her love of the Paw Patrol tv show…

If you have little ones and still don’t know about the Paw Patrol  You need to check it out as they  will soon invade your house!

If you have a sense of humor, you should read this post that appeared in my facebook feed earlier this week.  Click HERE!

Meanwhile, my 17 year old daughter loves those puppies and spent months asking us to go to all the stores in town to find an Everest to add to her collection.

We didn’t find Everest but eventually found this kit!


These figurines come with their pup packs and she got the silly chicken and cute cat too!

Emily was so happy to have them all now and obviously, if we were only missing Everest… you can assume that we have doubles…

Each dog has been matched with a princess, each match was made for a really specific reason.

Jon and I keep moving the princesses and dogs around just for fun.  It takes Emily seconds to realize that her toys have been moved 🙂  She continues to fix them up.  It’s amazing how she notices instantly when we do that.

Those figurines aren’t the only Paw Patrol puppies we have in the house.

Emily has many Webkinz so she picked 7 and named them after the Paw Patrol.  Those resides on her headboard.

Emily also have the pretend Paw Patrol puppies living with us.

Emily has a big pretend world!

Our house is full of so many pretend friends!

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If you like to read about Emily and would like timely updates of little and big things happening in her life, you should follow Lessons from my daughter‘s page on Facebook.  This is where I post tidbits of information before I have time to write a proper blog post.  Some stories might never get a full blog post!  Join us there too!

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

You can also find me on Twitter at @plebrass

I am on Pinterest too… one day I will figure out what to do there other than finding cool recipes but meanwhile, you can find me here: Lessons from my Daughter

 

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6 thoughts on “It’s not always about milestones and successes

  1. Haha. I have a few kids in the house who are obsessed with Paw Patrol. I often hear ‘No Momma! Me Sky!’ when calling Zoey over to me!

    • I’m at the point now that of Emily doesn’t want to do something g I ask the pretend Paw Patrol team to help me make Emily do whatever it is she’s not doing…. So far, they are really helpful!

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