friendship | Lessons from my daughter

Here we are, May 7th

Last day of Cri du Chat Awareness week

I hope you’ve learned some things over the past week

To celebrate Cri du Chat Awareness Week, let me introduce you to our Cri du Chat Family.

Like any good family picture, some members are missing but this is a good representation of our extended family!

Hello from New Zealand, UK, Iceland, Costa Rica, US and Canada

Awareness day 7

Of all the things I have shared with you this week, I hope you will remember that Cri du Chat is a spectrum, while some of our loved ones can walk or talk, other are in wheelchair or non-verbal.

This is a wide spectrum and all of our loved ones have potential.

To be non-verbal doesn’t mean no communication. It means other type of communication. It is amazing what our loved ones will do to achieve some sort of communication. I remember understanding Emily when the speech pathologist was convince she had no words. She had words, they were just not the words the pathologist wanted to hear.

Emily, like all the others, brings beauty, joy and love everywhere she goes. She also, like many others, have granted us many sleepless nights.

Dreams and hopes are crushed at first but we move forward and work to give our kids or loved ones the best life we can. We enroll them in therapy and learn along the way so we can help them reach their own potential.

It’s a journey!

None of our loved ones with Cri du Chat Syndrome are the same.

They are individuals who are defining themselves and finding their place in this big world.

I have had the privilege to meet other families and I have been lucky that some have agreed to talk to me in my “Interview with” series of blog posts.

Please take a minute to let me know if you enjoyed my 7 days of awareness and which day or information you enjoyed learning!

We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

Find more about about Cri du Chat syndrome at 5p- Society

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Uniform

Emily loves her uniforms so today, you get pictures 😍

Cheer – purple and sparkles for competition and the best team jacket in the world! She has some nice training gear too but somehow I don’t have a picture…

Horseback riding – pants, boots and helmet!

Baseball shirt and baseball hat

Uniforms give Emily (and others too I hope) a sense of belonging.

The uniform makes you part of the team and this means the world to me as when I look at Emily, I still see that little girl who wanted to be part of team so badly but just didn’t fit anywhere.

When you are this awesome and extraordinary, you can’t easily fit everywhere, you need to find those special places where your brightness can shine.

I am so proud of my girl for not giving up and slowly finding her place. Her Cri du Chat syndrome, once again, doesn’t define her! She defines herself!

Do you wear a uniform? If so, please tell me about it in the comment.

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A to Z Challenge 2016 – Lessons from my Daughter (PR) #712

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We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

Find more about about Cri du Chat syndrome at 5p- Society