Here we are, May 7th
Last day of Cri du Chat Awareness week
I hope you’ve learned some things over the past week
To celebrate Cri du Chat Awareness Week, let me introduce you to our Cri du Chat Family.
Like any good family picture, some members are missing but this is a good representation of our extended family!
Hello from New Zealand, UK, Iceland, Costa Rica, US and Canada
Of all the things I have shared with you this week, I hope you will remember that Cri du Chat is a spectrum, while some of our loved ones can walk or talk, other are in wheelchair or non-verbal.
This is a wide spectrum and all of our loved ones have potential.
To be non-verbal doesn’t mean no communication. It means other type of communication. It is amazing what our loved ones will do to achieve some sort of communication. I remember understanding Emily when the speech pathologist was convince she had no words. She had words, they were just not the words the pathologist wanted to hear.
Emily, like all the others, brings beauty, joy and love everywhere she goes. She also, like many others, have granted us many sleepless nights.
Dreams and hopes are crushed at first but we move forward and work to give our kids or loved ones the best life we can. We enroll them in therapy and learn along the way so we can help them reach their own potential.
It’s a journey!
None of our loved ones with Cri du Chat Syndrome are the same.
They are individuals who are defining themselves and finding their place in this big world.
I have had the privilege to meet other families and I have been lucky that some have agreed to talk to me in my “Interview with” series of blog posts.
Please take a minute to let me know if you enjoyed my 7 days of awareness and which day or information you enjoyed learning!
We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.
You can also find me on Twitter at @plebrass
I am on Pinterest too: Lessons from my Daughter
Find more about about Cri du Chat syndrome at 5p- Society