cri du chat syndrome | Lessons from my daughter

It’s not about being rich financially and being surrounded by perfect people doing everything they are supposed to when they are scheduled too.

Happiness is finding a way to appreciate and be thankful for your own circumstances.

For many, it’s easier said than done but with daily reminders to find little things that make you happy, you will find happiness.

I am thankful for family

I am thankful for a stranger who became family and will do anything to make Emily smile

I am thankful for the food we can afford and that brings us together.

I am thankful for hugs, kisses and silliness.

I am thankful for the opportunity to see my nephews get older and for being spoiled by having my mom as a friend.

I am happy and blessed. I know some people might think there is something wrong with me. I must be in denial, I have lost loved ones and I have a child with special needs…

Well, it’s a choice I make daily.

Happiness!

It’s the time again to introduce you to another family.

Today we meet Etta and her grandson Elijah.

1. Can you tell me about your family?

Our family consists of Michael (my husband), myself, three sons and Beth(our daughter-Elijah’s mom) 9 grandchildren. Beth, Elijah, and Jedidiah live with us.

2. Tell me about your loved one with cri du chat syndrome.

Elijah is 2yr. We noticed at 8 months old that he was still like an infant. He was not rolling over, showing no signs of sitting, nor anything an 8 month old should be doing. His brother Jedidiah was having therapy with babies can’t wait and we asked them about his behavior. We were sent for diagnostic genetic testing. We were told he was severe cri cu chat. Two weeks later, he rolled over, sat up, and crawled all in the same Week. He can walk but does not yet talk.

3. Tell me about doctor appointment, therapies or school.

He is now in occupational therapy and speech therapy. He is improving more and more daily!

Here he is!