Cri du Chat Awareness Week – May 1 to 7, 2016 (Day 5)

It’s May 5th already, I’ve been bombarding you with facts about Cri du Chat Syndrome for 4 days and I have more facts for you today!

Cri du Chat Syndrome is not something that can be cured but we love, therapies and family support, our kids have more chances now to reach their full potential!

Coming directly from the 5p- Society website

Treatments

Occupational therapy

Occupational therapy benefits our kiddos by providing fine motor, visual perceptual, self-care and sensory integration intervention to assist the child/young adult to maximize their skills, develop new skills and be able to relate more effectively to the environment around them.  Occupational therapists who work with children have education and training in child development, neurology, medical conditions, psychosocial development, and therapeutic techniques.

Physical Therapy

Children with Cri du Chat syndrome may experience physical difficulties during their growth and development. Physical therapy can help your child’s physical development in the following ways: helping them to sit, stand, improve fine motor skills, etc. The goal of physical therapy for children is not to speed up the rate of their development, but to facilitate the development of optimal physical movement.

Speech Therapy

Speech therapists work with children from an early age to aid in swallowing by providing advice on what best methods exist for feeding. As children with Cri du Chat syndrome grow older, they may experience problems with their speech. Speech therapists provide guidance on assisting children with communication issues by utilizing and teaching different methods of communication such as: sign language, picture exchange system, technology assisted communication, etc.

Alternative Therapies

Many families have found the use of alternative therapies as a way to complement Occupational, Physical and Speech therapy.  Here is a list of therapies that other children and/or adults with the syndrome have benefited from:

  • ABA Therapy (Applied Behavior Analysis)
  • Adaptive Physical Education
  • Aromatherapy
  • Aquatic Therapy
  • Behavior Therapy
  • Cranial Sacral Therapy
  • Dolphin Therapy
  • Hippo-therapy (also known as Horse Therapy)
  • Music Therapy
  • Play Therapy
  • Pragmatic Group Therapy
  • Sensory Learning Therapy

We have tried many therapies and activities over the years.

One of Emily’s favorite is Hippo-Therapy although I am fairly certain that if Dolphin Therapy was available around here, she would make us buy her a membership for life πŸ™‚

πŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œ

We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughterβ€˜s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

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A to Z Challenge – Day 21 – U

U

Uniform

Emily loves her uniforms so today, you get pictures 😍

Cheer – purple and sparkles for competition and the best team jacket in the world!Β  She has some nice training gear too but somehow I don’t have a picture…

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Horseback riding – pants, boots and helmet!IMG_8355-0

Baseball shirt and baseball hatIMG_8336

Uniforms give Emily (and others too I hope) a sense of belonging.

The uniform makes you part of the team and this means the world to me as when I look at Emily, I still see that little girl who wanted to be part of team so badly but just didn’t fit anywhere.

When you are this awesome and extraordinary, you can’t easily fit everywhere, you need to find those special places where your brightness can shine.

I am so proud of my girl for not giving up and slowly finding her place.Β  Her Cri du Chat syndrome, once again, doesn’t define her!Β  She defines herself!

Do you wear a uniform?Β  If so, please tell me about it in the comment.

πŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œ

A to Z Challenge 2016 – Lessons from my Daughter (PR) #712

πŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œπŸ’œ

We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

Find more about about Cri du Chat syndrome at 5p- Society

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