A to Z Challenge – Day 22 – V

V

Victory

Emily goes to a regular high school and follows her Individualized Education Plan (IEP).
Because Emily goes to a school we chose and not to the one in our neighborhood, we have to drop her off and pick her up daily.  We’ve been doing this for 6 years now and we have one more to go.
One thing I really enjoy is our daily chit chat after school.  I ask Emily specific open-ended questions on her day and I get small details here and there.
I love this.
Having a conversation with Emily, my girl, the one who was never supposed to talk, understand us and show emotions.  The one with the rare diagnosis of Cri du Chat Syndrome.
I cherish those moments and today was no different but one of Emily’s answer made me “over the moon” happy!
I asked Emily what she did in culinary tech and she answered:
“I conquered my fear!”
Her smile was even more beautiful than usual!
I asked for more information and here is what I got!
Emily doesn’t want to use the oven but today, her Educational Assistant (EA) warmed-up the oven and put empty pans in it.  Emily had to open the oven and remove the pans.
She did it!
She won!  The victory is hers, she faced her fear and won!!!
This is huge for Emily and reminded me that she had another similar victory last week when she used the electric mixer.  Between the safety guidelines, the power, the noise and the vibrations, this wasn’t something Emily wanted to do but slowly, she did it!
My girl is awesome!

“Victory belongs to the most persevering.”
Napoleon Bonaparte

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A to Z Challenge 2016 – Lessons from my Daughter (PR) #709

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We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

Find more about about Cri du Chat syndrome at 5p- Society

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A to Z Challenge – Day 21 – U

U

Uniform

Emily loves her uniforms so today, you get pictures 😍

Cheer – purple and sparkles for competition and the best team jacket in the world!  She has some nice training gear too but somehow I don’t have a picture…

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Horseback riding – pants, boots and helmet!IMG_8355-0

Baseball shirt and baseball hatIMG_8336

Uniforms give Emily (and others too I hope) a sense of belonging.

The uniform makes you part of the team and this means the world to me as when I look at Emily, I still see that little girl who wanted to be part of team so badly but just didn’t fit anywhere.

When you are this awesome and extraordinary, you can’t easily fit everywhere, you need to find those special places where your brightness can shine.

I am so proud of my girl for not giving up and slowly finding her place.  Her Cri du Chat syndrome, once again, doesn’t define her!  She defines herself!

Do you wear a uniform?  If so, please tell me about it in the comment.

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A to Z Challenge 2016 – Lessons from my Daughter (PR) #712

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We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

Find more about about Cri du Chat syndrome at 5p- Society

cropped-img_9137-1.jpg