Ellie’s journey 

Do you remember that little baby girl I fell in love with recently? Ellie has Cri du Chat Syndrome, just like Emily and lives just a couple of hours away.

Her mom started blogging today! Yeah!

Please take a minute and go visit her blog!

Emmett and Ellie's world's avatarEllie and emmetts world

Ellie Jane was born at 10:20 pm on January 20th 2016 weighing 7’9 and 21 inches long .

So let me start from the beginning, I was a nervous wreck when I found out I was pregnant as I just had a miscarriage 4 months before, but I was happy to be having my rainbow baby. I had a healthy pregnancy, I was sick all the time but hey that’s normal 😉 all of my bloodwork and tests that they do during pregnancy came back clear as a whistle. When I hit the 18th week we found out we were having a girl! We were ecstatic since we already have a gorgeous little boy Emmett!

January 20th I went into labour, it was quick and didn’t have anytime for a epidural ! I instantly knew there was something wrong, Ellie wasn’t crying , they called another nurse and started working…

View original post 284 more words

Tenacity – How many time will you pull yourself back-up?

Tonight at cheer Emily and her team practiced lifting one of them of the floor. I’m sure their is a term for it but what I saw was my girl holding her friend in her arms with the help of her coaches.

Em was exhausted, this was difficult and not fun at all. She wanted to stop doing this and just go home…

I bribed her to stay with the promise of cheesecake!

Yes, I am that mom!

On the way home, I asked her what happened and she said it was too hard. She said “I can’t do this!”

I replied “yet! You can’t do this yet!” Than proceeded to tell her this story, my first ever blog post from way back when not many people followed Lessons from my daughter.

My girl is in the shower now so she can smell good before she tackles that cheesecake and she feels somewhat better about lifting her friend because currently she just can’t do it yet 😊

Here’s the story I told her!  It’s a short and powerful one!

Pascale LeBrasseur's avatarLessons from my daughter

When people look at my daughter, they see someone who is different, a teenager holding her parent’s hand, a young girl who seems “slower” (to be polite….).  A teenager carrying a doll around…..

Looking at my daughter now, I am reminded of a little girl who wanted to walk so badly that over 13 months (March 2001 to March 2002) she tried to walk every single day…  On average a couple of times per hour for 10 to 12 hours a day…  Do the math, a small 3 year old girl, fell at least 8,000 times but pulled herself back-up and tried again!

I don’t care what the outside world think…..  ok, that’s not true, I do care!  I hope the whole world could see that she is my hero, my personal life coach, that she has overcome so much in her life …..

A 3 year old taught me…

View original post 48 more words