Interview with Bonnie!  Let’s meet Turner!

On this beautiful Sunday, allow me to introduce you to Bonnie and her family. 

Hello Bonnie, can you tell me a little bit about your family?

Our family is made up of me, my husband Blaine, our daughter Angelina(10) and our son Turner (8) I also have a step daughter that doesn’t live with us. She’s 19. I was 32 when Turner was born. Blaine was 34. We had no struggles during pregnancy. 

  

Can you tell me more about your loved one who has cri du chat syndrome?

Turner was diagnosed just after he turned 2. He had raspy breathing and snoring which lead us to discover he had laryngomalacia, a soft voice box. When they saw him they asked about his not walking and talking at the age of 2. That lead us to an amazing pediatrician and genetics testing. 

Can you tell me about doctor appointments, therapies and/or school?

Our home is located 800 km/ 500 miles from the nearest center that can execute these types of testing. Travel is not optional and with  Turners diagnosis, we began traveling more than ever. 

Turner is a strong headed, bossy, sensitive kid. He’s typical in many ways. His best friend is probably his sister. She can understand the struggling words he chokes out, and knows how to make him laugh. 

His school has been a major partner in his progress. They have found his words, they have taught him to count. He can read about 200 sight words!!! I nearly cry just thinking about it!!  
They taught him to potty train, ride a bicycle with training wheels and are now working on riding a scooter. They even supported us by buying jewelry when we took the puzzling piece challenge to earn him an iPad. We couldn’t do it without them. 

  

Tell me a success story!

This winter, the boy that would never talk or walk, learned to read and ice skate! There’s nothing more Canadian than ice skating!! 

   

 Anything else you would like the world to know! 

Turner is not a common kid. He has no fear and will stop at nothing to do or get what he wants. That, I believe, will lead him to successes beyond our imaginations. ❤️

Turners diagnosis encouraged his step sister Haley to enroll in post secondary school to become a Special Needs Teaching Assistant. We are quite proud of her.
    

 

This is Turner and grandpa swordfighting with pool noodle light sabers.

Thank you Bonnie!

Next year, I’m moving out!

Yes, Emily said that over the weekend. 

She was upset about something and informed us that she was planning on moving out. 

I moved away for school when I was 17 so technically, she could be moving out next year. 

Technically, in another world, she would start Grade 12 next year and within a year could be moving out. 

I’m sad she won’t…

And

I’m delightfully happy she won’t…

I’m conflicted!

Emily hinted before at the possibility of moving out but it was never like it was this weekend. 

She made her announcement while sitting at the table waiting for food to be deposited on the table in front of her.  

 
Life is hard in our house!

I get that the other kids at school are talking about career choice and going away to University.  Hearing those things make her think. 

I can’t squish her dreams and aspirations for a carreer or for one day moving to an apartment. 

So, how did I handle the moving out comment?

I said:

Ok baby, if you want to be ready to move out next year we need to get you ready. 

We need to look at how much money you will need to pay rent, electricity, internet, tv and your phone bill. 

She looked confused. 

We will need to make a budget so you know how much money you need. You will need to earn your money because I already pay for everything here, I can’t pay there too. 

She just kept looking at me. 

Next, we need to figure out how you will get to school.  I won’t be there to drive you around so you will probably need to learn how to use the public bus system.  Maybe we can start looking into that soon. 

Complete silence. 

And we should start looking at things to do around the house… Cooking, cleaning, laundry… Finding your way to the laundromat.  

“Well, I’m taking a dog!”

Which one?

Maple!

Ok, well keep in mind, she has a nervous bladder and likes to pee on furniture so you will need to keep that under control.  

She didn’t look as excited about moving out anymore. 

What about night time?  Will you be ok on your own?  You should start staying home on your own for small amount of time so you can slowly get used to being on your own. 

“Mom? I think I’ll stay here a little longer!” 

 
Yes, life is not so hard here after all…