Able Sail

No matter what disability one might have, Able Sail believe we can all enjoy sailing.

Lately, many new people have started to follow Lessons from my daughter, I am humbled that so many have decided to read about our journey and at the same time, increase the very small percentage of people who have heard of Cri du chat syndrome.

If you are new to our blog and want to learn more about Emily’s diagnosis, please try those links:

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Introduction to Cri du Chat syndrome!

Raising Awareness

Every spring, we look at things to do for Emily during the summer.

It’s not as simple for us as it is for parents of other 17 years old teenager.  We can’t let her use one of the car to go to her job or spend time with her friends.  We are not planning her going away to college or university…

Since Emily has been 12, she’s been too old for day care and summer programs while being too young mentally for camps and programs for kids 12 years and older.

We found ourselves in a really strange place…

Jonathan worked part-time to stay home for Emily for awhile than moved into an overnight schedule so Emily could be home during the day, while he would try to sleep!

Try being the key word!

Emily has grown older and learned valuable life skills over the summer months but we feel guilty that she’s not socializing and participating in activities… allowing her so much free time has a down side… so much time watching tv, listening to music and playing with her dolls…  little stimulation, little learning opportunities.

What are parents supposed to do when their child is too old for day programs but too young for the programs she’s old enough for…?

Quite a conundrum!

This year, we made some changes, Jonathan is now working from home during the afternoon and evening which allowed him to wake-up with us in the morning and spend time with Emily when I went to work.

Emily continued her tutoring over the summer months (we are not forcing her, she loves it), she joined a new cheer team, continued baseball, joined the summer program at GMACL and started to sail!

Yes, we’ve put Emily into sailing!

I had heard about Able Sail in previous years and talked to Emily about it but she wasn’t interested!

This year, she said yes!  And she loved it!

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Could you imagine a better place to spend some time over the summer months?

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Jonathan loves fishing and boats…  so this was a perfect activity for them to do as opposed of Emily and I.

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Look at my girl!  She’s learning about sailing and loving it!

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If you are interested to learn more about Able Sail, have a look at their website here : Able Sail

I hope you can find something similar in your part of the world!

With fall around the corner and school starting next week, we say goodbye to sailing, baseball and the summer program at GMACL and we are excited that cheer is continuing and that horseback riding will be starting again for the fall season!

I can’t type fast enough to tell you about all the wonderful things we’ve done this summer.

California – Road trip

   
I need your help!

We are planning a road trip!

So far, it looks like we will fly into San Francisco and drive down to San Diego over 2 weeks somewhere around the July and August period in 2016

As you can see above, we got 2 books full of information! 

I only have 11 months to plan this right so please help me. 

Where should we stay?  

What do we absolutely need to see?

Where should we eat?

What are the things only locals know that we should know 😜?

We will be the 3 of us, the 3 musketeers.  

 
Remember our daughter has cri du chat syndrome so you know what this means right?  

Are you thinking limitations???

Haven’t you been reading my blog?!?!

It means that we are up for everything and anything 😉

We can eat anywhere

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We can walk

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We can dance

We can shop

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We can and will laugh our butts off

We like fancy hotels and small bed and breakfast as long as we all fit in 1 room. 

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We can play at the beach or at the pool 

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We like to play tourists (zoo, museums, anything really…)

We like to pretend we are locals

So, what should we do?

Thank you for your suggestions and if you don’t know anything about California, do a girl a favor and reblog! I really need help! 

Pretty please!