Tenacity | Lessons from my daughter

I told you on March 6th that Emily and I are joining the A to Z Challenge in April.

Some bloggers will pick a theme for this challenge, me, I needed to find a way to respect “Lessons from my Daughter”while doing this challenge! I can’t really see myself picking a random theme as my theme is Emily and our life. I blog about us, I blog about Emily and I tell you about her challenges and success, I do my best to raise awareness for Cri du Chat Syndrome while keeping you engaged and hopefully entertained!

Before signing-up, I talked to Emily about this!

We’ve had meetings earlier this year to talk about her future, to discuss what Emily wants to do, to try and figure out what will come after high school!

We made a plan

A big plan!

In there, somewhere, it says that Emily wants to start her own blog.

To help her, we enrolled her in some more tutoring class. We are certainly paying a University degree in tutoring but as long as my girl is learning, we will figure out a way to pay for this. They know her and are working extremely well with her.

So, this A to Z challenge, this will be my chance to introduce you to Emily’s writing!

So far, we’ve picked 25 words, not necessarily the words I wanted but I am allowing Emily to be the driving force.

Emily doesn’t like my suggestions for letter “Q” so I will need to get my dictionary out and find new options.

Emily also doesn’t want to write about hospital, therapies, surgeries and so on. She made that really clear by crossing off some of my words!

I bought Emily a new notebook and today we dedicated a page per letter. Look at her, she worked hard on this. I will try to dedicate some time weekly for us to work on these posts so they are ready to go out daily comes April 1st.

Stay tuned!

Thanks to Niki at The richness of a simple life for introducing us to this challenge.

Emily and I are #1022 of 1102 entries so far!

Check it out!

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NEW!!! We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

I just discovered StumbleUpon, I added a stumble me button on my posts but I have no clue what to do there: I believe you can find me under plebrass.

Find me and other mommy and daddy bloggers on Top Mommy Blog

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

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Whenever I have a chance to let the world know about my girl, I seize it.

I wish more opportunities would present themselves but for now, I will embrace what is there as I truly don’t have the time to go out and create opportunities.

Earlier this year or late last year, Emily was asked to be part of a calendar, to raise awareness for Cri du Chat syndrome

You can find Faces of Grace Organization on Facebook

For the month of January, you get some facts on Cri du Chat Syndrome

Cri du Chat (Cat’s cry) syndrome, also known as 5p- (5p minus) syndrome, is a chromosomal condition that results when a piece of chromosome 5 is missing. Infants with this condition often have a high-pitched cry that sounds like that of a cat. The disorder is characterized by intellectual disability and delayed development, small head size (microcephaly), low birth weight, and weak muscle tone (hypotonia) in infancy. Affected individuals also have distinctive facial features, including widely set eyes (hypertelorism), low-set ears, a small jaw, and a rounded face. Some children with cri du chat syndrome are born with a heart defect.

And the model for the month of October is non other than Emily!
I bought many calendars and shipped them to friends and family!

If you are in the US and would like a calendar, I beieve there are still some available for purchase : Here

If you are not from the US (like me) you might need to arrange with the person on the facebook page to get a calendar. 100% of the proceeds go to the 5p-society.

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NEW!!! We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

I just discovered StumbleUpon but I have no clue what to do there: I believe you can find me under plebrass but I need to spend quality time there.

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily