I am extremely happy that Emily is fairly high functioning but…
Yes, there is a but!
But, sometimes I feel people forget that she needs help and support.
I love chatting with her about her day, what she did and how she feels. Sometimes I get the typical 1 word answer. Other times we actually chat quite a bit.
Tonight she pulled one piece of paper out of her pocket with the word “Vietnamese” on it and told me that she needed to research and make a Vietnamese salad dressing for the salad bar at school tomorrow.
There is no notes in her agenda, no emails, nothing really to confirm what she said so we will go with it.
Emily and I researched the dressing, settled on this recipe and made a list of ingredients we needed to buy.
After dinner, Jonathan and Emily tackled the recipe and decided to double it.
I was sitting no far, just listening to the 2 of them and inserting myself in the conversation here and there.
Look at them!
Daddy made sure the measurements were good and he chopped the garlic and the hot peppers while Emily made sure that the dressing didn’t boil!
Emily had a small taste of hot chili peppers . She’s not going to do that again!
It was so much fun to see them share this moment, I loved it!
I love them!
My perfect family!
❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
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Find more about about Cri du Chat syndrome at 5p- Society
Emily has a her own page in the family stories , you can find it here: Emily



