From the get go, we knew Emily was different.
Nobody believed us but we knew.
What we didn’t know was why and what it meant.
She didn’t have that survival instinct that makes a newborn latch on their mother or on a bottle…
She didn’t seem to understand how to drink at all…
We knew she was different.
We struggled immensely while trying to feed her but we never gave up.
15 months later we had a diagnosis of cri du chat syndrome.
Emily’s syndrome has changed our life’s.
What many take for granted, we cherish. Accomplishments that are too small for others to notice, we celebrate.
Emily’s diagnosis has changed us.
In the future weeks, I will repost previous posts that explains what Cri du chat syndrome is and share some of my favorite blogs showing how Emily is defining herself as opposed to allowing her syndrome to define her.
If you are new at following my blog and want to learn about other families with a child or adult with Cri du chat syndrome, search my site for interviews.
Emily’s syndrome has given us an extended family of incredible individuals. Come meet them!
If you want to connect on Twitter, you can find me @plebrass
Or if you prefer Facebook, I just created a page for Lessons from my daughter. Please look it up.
Emily loves when I tell her how many followers her blog has. So please follow and share if you like her stories and enjoy sharing our journey.
In the meantime, here is a preview of my next post…
She’s a cheerleader, her team had a showcase over the weekend and are now getting ready for competition season.
I’m loving how fearless she is!