cri du chat syndrome | Lessons from my daughter

I’ve been saying this since I was pregnant with Emily and today was no different.

After 5 hours at the hospital, we were right, not exaggerating and the blood work proved it.

I’m not going to get in any details here but I wish that my opinion into my child’s well being would be considered.

When I tell the doctor that Emily lying around in her pj watching tv is unusual and a sure fact that she’s not well… To answer me that it’s pretty typical of a 16 year old is not ok!

I’ve been my girl’s advocate since before she was born. I have kept track of so many things over the years that I can answer almost any questions about my girl.

When we finally decide to take her to see the doctor, I wish they would listen to me.

Yes, she will be fine. It might take a day or two…. Maybe three or a week. Who knows but she’ll be fine because her parents (Jon and I) don’t give up. We keep track of everything than ask the real questions and push for tests.

That’s our job and we wouldn’t trade it.

Here’s my lovely girl yesterday!

Today, Emily found her 6th pony.

Rarity!

She’s been going in that little store every time we are at the mall.

She goes in, looks at the pony and ask if they have Rarity.

Normally the answer is “no, all we have is on the floor”

Today, someone who might be the manager, went out back and looked for Rarity while Emily crossed her fingers.

She came back with it!

Emily squealed, jumped, pet her pony and talked louder than necessary when the other employee asked her question about her pony collection.

Emily’s enthusiasm was contagious!

When Emily was paying for her pony, the lady behind us in line to pay was smiling.

As I asked Emily if she was happy, the lady said: “I am happy too, I’m not sure what she’s buying but I’m happy she found it and I don’t even know you.”

The cashier and manager were smiling too.

We were all smiling.

No staring, no wondering why a 16 year old was buying a pony, just smiles and genuine happiness to see her happy!!!