Cri du Chat Awareness week 2018 (Day 5)

My girl!

It’s been quite a journey and transitioning to life after high school has brought a whole new set of challenges but through it all, we have raised an amazing young lady and everyday, I get hugs and kisses.

My young adult daughter still falls asleep in my arms and holds my hand when we walk together.  She doesn’t care if people are looking at us and she has taught me not to care.

She’s also teaching me about determination and continues to develop my patience.

But most of all, she is teaching me about finding joy in the little things an loving unconditionally.




Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page on Facebook.

You can also find me on Twitter at @plebrass


Look who’s sitting in her car again!


This time, I’m in front of one of the local Boys and Girls club, it’s after dinner time, it’s cold and I didn’t bring my book.

Emily is in there with the lady from Community Living and her intern.

If it goes well tonight, this could be another recurring volunteer gig for my girl so I’m sitting here for what could be 3 hours…

Here’s to hoping she can have support worker hours approved to help with this as I can’t imagine I would enjoy volunteering here to help her.

How I wish I could be a fly on the wall to see how the kids are reacting to her, if they are nice to her, if she fits in.

I hate not being with her and provide her a buffer just in case but I know I have to give her room to learn and grow…

This is a crazy roller coaster ride my friends and here I thought it would get easier once she would be an adult.