A to Z Challenge – Day 19 – S

S

Surgeries

Nothing recent, lucky for us but over the years, Emily had 3 surgeries.

Two for her eyes and one to control her drooling.

Emily has beautiful eyes

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When Emily was little, she had a lazy eye (strabismus)

We patched her strong eye in the hope to reinforce her weak eye for aesthetic of course but mostly because Emily’s brain only uses one eye at the time.  We were worried her brain would eventually stop using her right eye which could have meant that eventually Emily could lose her eye.

You are closing one of your eyes right now and slowly realizing that Emily doesn’t have 3D vision.

This no 3D vision combined with her mobility issues will forever create challenges for Emily as a change in color or texture on the floor could be a step.  Whenever we are somewhere new, you can see Emily moving slowly and feeling ahead with her foot to confirm if it’s flat or if it is a step.

Back to her surgeries, the patch didn’t do much for her other than upset her so the surgeries were mentioned.

After asking for a second that said to put glasses on her, we got a third opinion, who said the surgery would be better so we agreed on the eye surgery.

Emily had her first eye surgery in Montreal when she was 4.  We knew when we went in for her first surgery that she would need a second one.  The first one loosen up some eye muscles while the second one tightened the other muscles.  The surgeries were on both of her eyes and corrected the strabismus and her “V” syndrome (where she used mostly the top of her eyes)

Emily recovered nicely from the first surgery and a couple of years later, she had her second surgery in Halifax, Nova Scotia.  She recovered really nicely once again and today, her eyes are straight unless she’s exhausted.

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And against all odds, I believe that sometimes, she uses both of her eyes together, this is mostly for table work and the black 3d glasses that were only at Disney awhile back but are now in theaters everywhere seem to also work for Emily.

This takes us to Emily’s third surgery when she was 7 or 8.

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By that time, Emily was a drool machine.  She always struggled with drooling and it got worst as she got older.  In first and second grade, other kids react to that one kid who is always wet, wiped her mouth on her clothes and have a chin that is always irritated.  Emily started to be self-conscious so we consulted and decided to go with another surgery.

Emily had her tonsils removed, some of her saliva ducts relocated lower in her throat and some of her saliva glands in her mouth burned.

She, once again, recovered quickly!  She is quite a trooper!

Look at my girl, no more drooling and gorgeous eyes!

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Surgeries are not for everybody and we didn’t chose to go that way easily.  We looked  at options and weighted the pros and cons.  In our case, these were worth it!

A to Z Challenge 2016 – Lessons from my Daughter (PR) #800

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NEW!!!  We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

I just discovered StumbleUpon but I have no clue what to do there: I believe you can find me under plebrass but I need to spend quality time there.

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

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A to Z Challenge – Day 18 – R

R

Recollection

Emily woke-up tired this morning…  It might have to do with her being awake at 1am looking for her phone.  She went back to bed without it than she was up again at 2am to use the washroom.  I don’t know if she was awake between 1 and 2am but she wasn’t waking up at 6:30am.

All that to say that I finally got her up and moving along but we are not getting any extra out of her today.  That means no writing so instead, I will tell you something you might not know yet about Emily.

Emily’s power of recollection!

Emily loves toothbrush, at any given time, she has anywhere between 5 to 10 toothbrushes and in cup in the bathroom.  Why so many?  She loves them and at every visit to the dentist, she gets a new one and opens it right away.  She buys them at the drugstore and sometimes at the grocery store, she LOVES them.

Yesterday, I needed a small brush to clean one of my ring so I went in that bathroom and grabbed the oldest looking toothbrush there.  I couldn’t grab mine or Jonathan’s as we both only have 1 toothbrush each.

I grabbed a toothbrush that was ready for garbage, I cleaned my ring than tossed the toothbrush.

At bed time, Emily went to the bathroom to get ready and from across the room I heard… Where is my orange toothbrush?

I couldn’t believe that she knew the orange toothbrush was missing.  Someone could argue that she was emotionally attached to this particular toothbrush but she recollects/remembers things like that regularly.

It is as if even way back when she couldn’t talk, Emily has been learning and remembering than now, she tells us things, she recollects events, toys, people and places.  Sometimes it is recent, like last night while other times it is things from years past.

You know, this is the girl who wasn’t supposed to recognize us, show emotions, she wasn’t supposed to understand the world around her and wasn’t going to talk to us.

Take that Cri du Chat Syndrome

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A to Z Challenge 2016 – Lessons from my Daughter (PR) #801

💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜

We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

I just discovered StumbleUpon but I have no clue what to do there: I believe you can find me under plebrass but I need to spend quality time there.

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

cropped-img_9137-1.jpg