Grateful | Lessons from my daughter

Emily

My girl picked her name for the 5th day of this challenge.

During my pregnancy, I called my belly Mishell Alana. That was my baby girl and up until the moment she showed-up that was her name.

Then we met her…

Jonathan said what about Emily?

And I said yes!

Hi my name (is) Emily. I am so enjoy. I am so truefully (thruthfull). I am so fearless. I love A.G. dolls. I love my dogs Jake and Maple ❤️. I love the show Scrubs. I love my mom and dad.

A to Z Challenge 2016 – Lessons from my Daughter (PR) #992

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Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

Jon has been under the weather for awhile

Sunday evening, I felt the chill.

Yesterday morning I woke up with a headache which by mid-day had transformed into a full on headache, earache, sore throat, sensible skin, chill and probably fever.

I’ve never, ever felt that bad before!

I went to the clinic and got some medication as it was within 24 hours of the symptoms starting.

I slept from 3pm till 11am today and still can’t function.

And now, my girl is not well so we are starting her on medication too.

I hope we got this before she was anywhere near where I was yesterday. I hate that she can’t tell me when she’s not well.

This is one of the side effect of Emily’s Cri du chat syndrome that I truly hate. I don’t know if it’s because she can’t feel it or because she can’t describe it but there is no way for me to know exactly how she feels. It’s a guessing game.