Emily’s food sensitivities 

My girl doesn’t like me talking about her digestive system…

All I can tell you is that Emily has had a tummy ache probably from the moment she had her first drink as a newborn. 

Over the years we’ve changed her milk, changed her diet, added bran and prunes, removed dairy, added it back when it didn’t help, removed bananas and added them back…  we tried many things but never figured out how to help her tummy. 

As a mom, even though my girl is 18, I still want to help her so this past summer, I took her to a naturopath and decided to have blood work done to look for food sensitivities. 

I know it’s a controversial subject. Many don’t believe in the results from the test but I felt like this could give us a new path to explore. 

As my lovely husband pointed out that the veracity of that particular blood analysis isn’t proven, I reminded him that Emily’s diagnosis comes with a proven list of “will never”.  

Never walk, never talk, never understand or even recognize us…

It’s proven!  But we all know that it’s not true!  Emily does all those things and more so with that in mind, we went to get her results this past September. 

My fabulously amazing daughter flagged for 35 food sensitivities. 

35

That’s a big number!

Our naturopath wasn’t sure how we would react to all of this but we had decided to take clear steps towards eliminating the food that Emily can’t process properly in order to help her. 

Jonathan and I were ready to follow the same rule as Emily. 

In no specific order:

  1. Cow milk 
  2. Goat milk
  3. Sheep milk
  4. Egg yolk
  5. Egg white
  6. Casein
  7. Mushroom
  8. Potato
  9. Rice
  10. Corn
  11. Pea
  12. Bean (red kidney)
  13. Bean (white haricot)
  14. Soy bean
  15. Lentil
  16. Cabbage (savoy/white)
  17. Baker’s yeast
  18. Brewer’s yeast
  19. Blackberry 
  20. Raspberry
  21. Hazelnut
  22. Cashew
  23. Almond
  24. Peanut
  25. Brazil nut
  26. Pistachio
  27. Sunflower seeds
  28. Barley
  29. Oat
  30. Wheat bran
  31. Durum wheat
  32. Rye
  33. Gliadin
  34. Wheat
  35. Mustard seed

Before removing gluten, we had Emily tested for Celiac and I’m happy to say she’s not allergic to gluten, just sensitive. 

After the celiac test was done, it took us a day to remove everything in the kitchen that contained some of these items and we are slowly finding new ways to eat although some food we haven’t quite figure out how to replace or substitute.

Don’t worry, we still have lots of good things we can eat, here are some examples!


We’ve had something that kinda felt like pasta once…. 😳

I haven’t found a good cookie recipe yet 😢

And pizza without cheese is not really worth it 😳

On the positive side, Emily’s tummy felt better within a week of cleaning our eating habits!  We are not ready to start reintroducing items yet but we are looking at lowering her medication. 

I call that a win!

The things I know!

I am aware of so many things… 

I can tell you what time it is without having to look at a clock. 

I know how long it takes for Emily to….

Wake-up

Use the bathroom

Brush her teeth

Have breakfast with or without the tv on

I know her school schedule, her tutoring schedule, when she cheers, plays baseball, sails, rides (horses) or have appointments

Yes, I write it all on the calendar on the wall,  in a paper agenda and in a shared electronic calendar but I still know before any of those tell me

I am aware of ….

How much soap she uses in the shower or if she needs help rinsing her hair

I know how long it will take her to get dress after a shower as opposed to getting dress on a morning without a shower

I am aware of the food we have in the pantry and in the fridge so I know that we are ok to have breakfast and make lunches for school

I am aware of which pieces of clothing are clean and which are in the laundry basket. I always know if what she wants to wear is clean 

I am aware of how long it takes Emily to pick an outfit

I know when I need to pick her outfit and I know how to lay her clothes on her bed for her to get ready faster


I get a little nagging feeling when she needs help.  By the time she says “mom!?!?!” I’m already on my way 

It’s not even 8am and all of this has happened already

💜💖💜💖💜💖

While I make sure Emily stays on task, I am also getting ready for my day.

I know how she is feeling.  I know when she’s healthy or sick and I know when she’s trying to fake being sick. I know which part of her body hurts even when she can’t tell me

I am aware of the help she might need to clean-up and do her hair and make-up

I know to ask her if she wants to put on jewelry

I am aware of the weather

I know how to help Emily pick her shoes, jacket and scarf for the day

I know the music she wants to listen to on the way to school

I am aware when she wants to talk and when she wants to sing

I know some of her dreams and hopes

This week, she started grade 12!


I know everything she eats

I know the shows and movies she likes

I thought I knew all of her struggles but missed a big one recently, it nearly broke my heart to learn about it

I see every changes on the floor, ground, sidewalk, hallway, stairs. I know Emily might not see them or might think their is a step when there is none. So I am aware of our surroundings.  All the time!

I know her medical history

I am her biggest fan and strongest advocate

I am her mom and the day she was born I never dreamed that my life would be like this but today, I wouldn’t change anything!

I’m exhausted but I adore Emily, she is an amazing young lady

Now…

I know I need to find her that special person to teach her more about painting so she can improve her art

I know I need to help her make connections in the community

I know I need to focus on learning about adult programs, support workers and how Emily will continue to learn and grow after high school is over
I know I need to treat her like a young adult and teach her life skills

I know she needs to learn to be more independent 

I know this is where we are at but in my heart, she will always be my baby


If you haven’t had a chance, please go check Emily’s business page on Facebook:  Emily’s Hopes and Dreams