Doctors | Lessons from my daughter

Jon has been under the weather for awhile

Sunday evening, I felt the chill.

Yesterday morning I woke up with a headache which by mid-day had transformed into a full on headache, earache, sore throat, sensible skin, chill and probably fever.

I’ve never, ever felt that bad before!

I went to the clinic and got some medication as it was within 24 hours of the symptoms starting.

I slept from 3pm till 11am today and still can’t function.

And now, my girl is not well so we are starting her on medication too.

I hope we got this before she was anywhere near where I was yesterday. I hate that she can’t tell me when she’s not well.

This is one of the side effect of Emily’s Cri du chat syndrome that I truly hate. I don’t know if it’s because she can’t feel it or because she can’t describe it but there is no way for me to know exactly how she feels. It’s a guessing game.

Cri du Chat Syndrome

When asked about her syndrome, Emily will tell you it’s cry like a cat syndrome or 5p- and that she is missing a small piece of the short arm of her 5th chromosome!

When it was time to write about it, I think the word chromosome scared her so she wrote this instead: