March | 2016 | Lessons from my daughter

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Thanks to Niki at The richness of a simple life I have discovered a yearly challenge that I can’t wait to tackle.

To be honest, before signing-up, I had a chat with Emily and started to work on our list!

On April 1st, we start with the letter A and we write our way through the alphabet. It can be a word, a proper noun, the letter used as a symbol, or the letter itself. For the challenge, you can write about whatever you want.

In our case, it will all be centered around Emily and as a bonus for you all, Emily will write a little something too! This will be a first blogging! How cool is that!

Emily and I are #1025 signing up!

What is blogging from A to Z

FAQ

Join us on this journey: Sign-up here

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NEW!!! We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

I just discovered StumbleUpon but I have no clue what to do there: I believe you can find me under plebrass but I need to spend quality time there.

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

New blog! Nolan plays baseball with Emily, I’ve known him and his family for years and love the stories his dad shares on Facebook. I can’t wait to dive into his new blog and I hope you will stop by and read it too!

nolanisms

When my son Nolan was three months old, he was diagnosed with a rare genetic disorder called Williams Syndrome (https://williams-syndrome.org/what-is-williams-syndrome). In short, Nolan is intellectually disabled and has several medical challenges that include a heart condition, high blood pressure, Hyperacusis (sensitive hearing), Musculoskeletal problems, and ADHD.

I often describe Williams Syndrome as a cross between the better known disorders of Autism and Downs Syndrome. Like Downs, WS people are very friendly, affectionate and trusting…to a fault. They don’t see bad in anyone, only good. Other WS traits include a very heightened level of empathy, great affinity for music and they are all extremely social. They are often described as the “Cocktail Speakers” because they always seem to know what to say and when to say it (sometimes honest to a fault as well!). However, I believe this ties in with their strong emotional sensitivities and their gifted memory, which is a good segue to the autistic side of things. Like…

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