Pascale LeBrasseur

What is the 5P- Society?

The 5p- Society (five p minus) is the parent support group for families having an individual with 5p- Syndrome, also known as Cat Cry Syndrome or Cri du Chat Syndrome. The 5p- Society is a 501(c)3 not-for-profit organization. Its Federal Tax Identification Number is 48-1022202.

MISSION STATEMENT

To encourage and facilitate communication among families having a child with 5p- Syndrome and to spread awareness and education of the syndrome to these families and their service providers.

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WHO ARE THEY?

The 5p- Society was founded in 1986 by parents of children with 5p- Syndrome, with the intent of spreading information about the syndrome to other…

Re blogging posts for Cri du chat awareness week from last year as they are still appropriate!

Lessons from my daughter

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With a rate of 1 in approximately 50,000 birth, Cri du Chat randomly appears 7 or

8 times per year in Canada. In a country covering 9.985 million squared km, these 7 or 8 babies can be really far away for one another.

For us, when Emily was little, it meant no other families were near by.

For us in 1999 when she was diagnosed, it meant that our only source of information was a really slow internet connection.

Fast forward to today, the internet is faster, facebook is full of support groups and many bloggers out there raising awareness.

I am one of these bloggers!

Cri du Chat Syndrome is characterized at birth by a high pitched cry, low birth weight, poor muscle tone, microcephaly, and potential medical complications.

Cri du Chat Syndrome is also called 5p- (5 p minus) Syndrome.

The term “5p-” is used by geneticists to…

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