Home » Life lesson » Cri du Chat Awareness Week – May 1 to 7 2016 (Day 1)

Cri du Chat Awareness Week – May 1 to 7 2016 (Day 1)

Re blogging posts for Cri du chat awareness week from last year as they are still appropriate!

Lessons from my daughter

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With a rate of 1 in approximately 50,000 birth, Cri du Chat randomly appears 7 or

8 times per year in Canada. In a country covering 9.985 million squared km, these 7 or 8 babies can be really far away for one another.

For us, when Emily was little, it meant no other families were near by.

For us in 1999 when she was diagnosed, it meant that our only source of information was a really slow internet connection.

Fast forward to today, the internet is faster, facebook is full of support groups and many bloggers out there raising awareness.

I am one of these bloggers!

Cri du Chat Syndrome is characterized at birth by a high pitched cry, low birth weight, poor muscle tone, microcephaly, and potential medical complications.

Cri du Chat Syndrome is also called 5p- (5 p minus) Syndrome.

The term “5p-” is used by geneticists to…

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