awareness | Lessons from my daughter

It’s been awhile the last time I published an interview but this is something I love to do and once in awhile, I reach out to our Cri du Chat family on facebook and ask for volunteers!

Today, I have the pleasure to introduce you to ChristyAnn and Lexie!

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Hello ChristyAnn and thank you for taking the time to chat with me.

Q: Can you tell me about your family?

A: Lexie is one of 6 kids. She is number 5 in birth order. She will be two at the end of this month.

Q: Tell me more about Leixe who like Emily has cri du chat syndrome.

A: Lexie has good receptive language, you can tell she understands, but her expressive language is delayed. She is learning sign language . She crawls, sits up, pulls self to stand, tries to climb, but won’t walk yet. She loves to tease people. She’s a little jokester. Always laughing, always happy.

Q: Tell me about doctors, therapies or school?

A: Our days consist of Lexie and her little sister. We have physical therapy once a week. Speech therapy with vstim once a week. Occupational therapy 4times a month. And numerous doctor and specialist appointments in between. Her most important doctors have been her pulmonologist and GI doctor.

Q: Tell me a success story?

A: We have faith that every milestone has been because of God. I take her regularly to receive anointing of the sick at our church. And milestones seem to come after these blessings.

She used to have a hard time holding her head up because of low tone. So her head would always rest towards her right shoulder. A few days after her first anointing, her kink in her head was gone. grin emoticon I truly believe that prayer, faith, and hard work keeps her achieving milestones.

This was her as a baby. You can see her turning her head to her favorite shoulder. Therapies involved helping her stretch, and massaging her neck gently.

Q: Anything else you would like the world to know?

A: She also loves cats and dogs.

Lexie has her own facebook page if you would like to follow her progress.

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NEW!!! We have a facebook page: If you want short updates and timely pictures of the little things that are happening in our life, please like and follow Lessons from my daughter‘s page.

You can also find me on Twitter at @plebrass

I am on Pinterest too: Lessons from my Daughter

I just discovered StumbleUpon and added a StumbleMe button in my sharing options. I have no clue what to do there but I believe you can find me under plebrass.

Find me and other mommy and daddy bloggers on Top Mommy Blog

Find more about about Cri du Chat syndrome at 5p- Society

Emily has a her own page in the family stories , you can find it here: Emily

I told you on March 6th that Emily and I are joining the A to Z Challenge in April.

Some bloggers will pick a theme for this challenge, me, I needed to find a way to respect “Lessons from my Daughter”while doing this challenge! I can’t really see myself picking a random theme as my theme is Emily and our life. I blog about us, I blog about Emily and I tell you about her challenges and success, I do my best to raise awareness for Cri du Chat Syndrome while keeping you engaged and hopefully entertained!

Before signing-up, I talked to Emily about this!

We’ve had meetings earlier this year to talk about her future, to discuss what Emily wants to do, to try and figure out what will come after high school!

We made a plan

A big plan!

In there, somewhere, it says that Emily wants to start her own blog.

To help her, we enrolled her in some more tutoring class. We are certainly paying a University degree in tutoring but as long as my girl is learning, we will figure out a way to pay for this. They know her and are working extremely well with her.

So, this A to Z challenge, this will be my chance to introduce you to Emily’s writing!

So far, we’ve picked 25 words, not necessarily the words I wanted but I am allowing Emily to be the driving force.

Emily doesn’t like my suggestions for letter “Q” so I will need to get my dictionary out and find new options.

Emily also doesn’t want to write about hospital, therapies, surgeries and so on. She made that really clear by crossing off some of my words!

I bought Emily a new notebook and today we dedicated a page per letter. Look at her, she worked hard on this. I will try to dedicate some time weekly for us to work on these posts so they are ready to go out daily comes April 1st.

Stay tuned!

Thanks to Niki at The richness of a simple life for introducing us to this challenge.

Emily and I are #1022 of 1102 entries so far!

Check it out!

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